Hello...
I was diagnosed with invasive DCIS, I've had surgery and finished radiotherapy in Dec, now on Tamoxifen. The tumour was ER+ and HER2 +.... I didn't know anything about HER+ or what it was until I received a letter from the consultant... and then"Googled" it...Just wondered if anyone has any knowledge of this... I'm assuming if it was anything to be concerned about the hospital would have been in touch??.... I have a follow up appt next month..X
Hi Gingerbob
That must’ve been a strange to hear you are HER2+ after already having a bunch of treatment. However one of my friends had DCIS and was HER2+ and didn’t require any chemo or Herceptin injections and like you just had radiotherapy and is on Tamoxifen. So I think it depends on your personal circumstances as to whether you need additional treatment. I’d make sure you ask your consultant the reasons behind you not needing Herceptin if only to put your mind at rest.
Wishing you well for your consultation
Loffie x
Hi all I had my consultant two week operation review today cancer all removed was also told I was HER2 + so probably will have to have chemo first then radiotherapy then tablets I will know more when I have my oncologist app in a few weeks time I'm over the moon that it didn't spread it was contained in the breast thank God so next stage treatment regards Belinda xx
Hi Gingerbob there are quite a few ladies on here who are Her2+ including me .
My story is on my profile just click on name to read .
Her2 is a protein than can attach to any stray c/ cell an make it duplicate and grow rapidly . As with a lot if cancers they now can treat this .
I was told after mastectomy that results were Her positive so would need chemo to catch and kill off any stray cell from the BC . The Herceptin every three weeks for 18 cycles ..mine was a injection in thigh . I finished that in January and am now on bisphosonate infusion every six months til next year . At first if all sounded very complex and lengthy but it's all passed quite quickly .
I was told the treatment is belts and braces to reduce the risk of recurrence .The expected reduction is 50% so risk is now 20% approx.
I stress this is what my onco has told me and to be fair I didn't ask about risk of recurrence til after Herceptin was finished....I wanted to concentrate on getting thru treatment not the what ifs .
Dont be frightened to ask your onco for a explanation of anything you don't understand .
best wishes with your treatment
Thank you for sharing your experience... I guess I am hesitant to ask, I feel mine is more trivial than most and don't like to be a bother.
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Nothing is trivial about your diagnosis Gingerbob and your team will not believe you are a bother . They want you to understand what your treatment plan is and how it might affect you .
I don't know what may or may not be said at your follow up app but you could if you wish ask phone your BCN and ask any questions you have .
Everyones plan differ according to type of BC and age of patient etc but you need to be clear about the what and why to help you adjust .
keep well
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