Anyone else here on weekly Paclitaxel and 3 weekly trstuzumab?

Hi 

I am going to be starting the same regime as you in three weeks, also with cold cap. How are you finding it so far?

Hi Darbydoo- the cold cap is fine ? i think i’m a weirdo as i quite like the cold feeling. We are really lucky in my unit as our machines are brand new so not sure if that makes a difference. i would take two paracetamol before you go just to take the edge off the feeling of pressure on your temples

the Pax and Tras have been ok. i have them on a friday and i am just super tired on a Sunday and Monday. let me know how you get on xx

Good morning all. 

Hoping that you are all well as things have gone pretty quiet here.   

Finally had my first radiotherapy yesterday, only 19 to go!   All very relaxed and the radiographers were lovely

Also had to pick up mega doses of anti-fungals as my thrush just will not let go.   I'm now on my 4th course.   They are giving me another month of tablets and another week of nystatin to see if that will finally zap it.   If not I think it is then over the the microbiology guys to find something that might actually work.   Very frustrating.   

The good news is that the hair really is coming back apace.  I no longer look like a hard boiled egg!!!!

Hi Liz, sorry to hear about the thrush but glad the radiotherapy has started. I found it not too bad and 2  weeks after finishing have no nasty side effects. Have been back at work properly and have had the first fortnight this year with no appointments .  Started on Tamoxifen and ok so far except the lovely night sweats. Finished chemo 6 weeks ago and have just this week shed the  majority of my eyelashes and eyebrows. I am not impressed as look more like a cancer patient now just as I start to feel better.  Am glad your hair is coming back. I have a covering of blond fluff but it looks odd and sticks out all over the place. Am getting impatient and keen to have enough so I can stop wearing scarves and hats as they make me hot. Hope everyone else is well. 

Glad you are on the right road now NotaKaren, but those night sweats fill me with dread.   Rest assured that the eyebrows will come back very quickly.    I have been repeatedly advised that it is worth the delay of getting that hair dealt with at this stage as it will speed things up.   Be brave NotaKaren and get it shaved!!!!    

Good to hear you have started radiotherapy Lizb - one day closer to the end of it at least! Continued thrush problem is a pain though, hope you can get it sorted soon.

Glad to hear you’ve reached the 2 weeks of no treatment stage NotaKaren - you forget how much time it all takes up! Your hair sounds similar to mine - I’ve got a very short but full coverage now but random bits are longer and stick up!! Being fair makes it harder to see regrowth also - hoping another month or so and I can dispense with the hats, just too hot!

Im starting to feel much more normal now but still have very little energy, and boob still tender but getting bit easier. Nails a bit of a strange colour but not lost any yet! I have been working more each week but do have to pace myself as it’s easy to overdo it and then be washed out for a few days - or maybe that’s just me! Herceptin this week and review with oncologist, first since radiotherapy finished.

I'm not sure if I envy you or feel sorry for you NotaKaren and JoesDog for finishing Radio as the dreaded hormone debate will start.   I am dreading that bit.   Night sweats sound delightful .   I hadn't realised just how much stress and chemo had messed with my sleep and it sounds like that is going to start all over again.

My nails are still very touch and go, and a bit of a funny colour, but the worst is if I do too much manual work they split away from the skin underneath and I don't realise until too late.  But glad you are getting there JoesDog

Hi guys

I'm really pleased you are all doing so well and we can see the light at the end of the tunnel. 

Apologies for being so quiet, my dad was diagnosed with secondary spinal cancer 3 weeks ago and unfortunately passed early hours of Sunday morning. You think that after my own battle, the dreaded C would leave me be for a while but unfortunately not. Such a cruel twist in my journey and I'm absolutely devastated.

Stay safe ladies

Dannielle 

Oh Danielle, what can I say, but big hugs to you and your family.   Life is pretty s*** at times and it sounds like you have had more than your fair share of it.    

Lizb6

Iets just say 2021 been a rough year... I hope none of us ever have to experience cancer in our lives ever again