Since July last year I have followed this Macmillan site as a way of coping with and researching the devastating news that my best friend, my hero my dad was diagnosed with stage 4 inoperable pancreatic cancer... It has been a tough journey that’s for sure but he is still fighting and I am so very proud of him and of my mum who has been so strong. Today at the cancer ward we had some heartbreaking news from the specialist.. however in today’s appointment it was not my dad sat beside me, it was my mum, she was told today that she has stage 3 secondary breast cancer,triple negative , it has spread to her lymph nodes and the lower portion of her lungs... is there anyone out there who can share their experience of the same diagnosis.
I don’t know what I am supposed to be feeling ... I’m just determined to appear as the tower of strength in front of my parents on a daily basis just as I have since dads diagnosis.
thank you to anyone who replies.
Ben x
Hi Chainsawsorry can't help with experience of Secondary or TNeg. But by replying hope to bump you up so people can see your post and reply . I know there are people who are living with this diagnosis so hopefully they will read your post .
Hi Chainsaw
I'm so sorry to hear about your reasons for being here. You really do have a lot on your plate, don't you?
I don't have the same experience as your mum, but there are certainly people on here who do and I hope they will be along shortly to give you some information.
One thing that we do always say to people in the breast cancer group is that it's very treatable. I know your mum is dealing with secondary cancer, but there is still much to be positive about. Treatments can still be effective for many years and new drugs are becoming available all the time.
I see you've posted this in our other groups too and you may be more likely to get replies there although lots of our members tend to post in several of the groups and this is the largest one.
Now, let's talk about you. I can completely understand that you want to be a tower of strength for your parents - of course you do and I am sure they are lucky to have a such a dedicated son. But - cancer takes its toll on everyone and it's really important that you look after yourself. I have seen the effect that my cancer had on my adult daughter and it breaks my heart - remember that you are going through this too and also need support. I hope that you have people around you who can be the same sort of strength for you that you are being for your mum and dad.
I've had a peek at your profile and see that you've been given the link to the Family and Friends group before - it is always there for you as are the other groups recommended to you. I also know you may not feel like getting support here if you are posting about your mum and dad, so please remember that you can use all the other forms of emotional support that Macmillan offer - like the telephone support line. they are there for everyone affected by cancer. If that doesn't appeal, then other organisations are also able to help family and friends - Maggies, for example.
As I'm writing this someone has bumped you up the list - we'll try to keep your post visible until you get some experiences similar to your mum's but always feel free to bump your own post up the list. This is a really large group and things move quite fast at times so we try to keep things on the first couple of pages.
Sending some virtual strength to you
R
Hi again Chainsaw if you go to search bar at top and put in triple neg and secondaries you can look at results which are previous posts . Most are on the new here say hello thread .
Bump
Hi Ben, so sorry to hear what your parents are going through. I am sure you are a great help to them at this time. My sister has secondary Breast cancer in her bones. She is having drug treatment every 3 months which she has had now for two years. There are many treatments now and I hope your mum can benefit from these as well. Sending big hugs to you all and pray you find the stenghth you need to support them both and yourself. Anna
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