Was on anastrole for 5 yrs and had horrible side effects, had a mammogram in June and all clear, told I can stop anastrole and was delighted and felt much better in myself. No hot flushes insomnia and no nausea. 2 weeks later my consultant rang me and asked me to take it for another 2 years, don't think I can go through all that again tbh. Any else asked to continue anastrole after 5 years?? Is there any benefit? Thanks
Hello Val62, There is a test you can have done called the Breast Cancer Index which they can do after you have been on hormone blockers for 5 years. This test can determine if you would benefit from taking the hormone blockers for longer. Here is the link.
Take care
Barbara
Is this available in England on the NHS? Also 5 years later where would they get the sample tumor material to test from.
I am now 5 years post starting aromatase inhibitors. I was on exemestane. I have just stopped taking it. I hated the stuff but it feels very odd and somehow scary. I had a double mastectomy with no reconstruction so I have nothing to check. I worry that I won't know until it is too late if it should come back somewhere else. There is no final consultation or even follow up. I stopped gradually taking it on alternate days for about a fortnight and now have had nothing for 3 weeks but so far I have no fewer aches and pains. I am 75 .
Hello, yes it is available in England through NHS..I live in US but googled it and said it was available in the UK. They get the specimen from the tumor they removed during your original operation. Can be done on women who had node negative disease or if you had 1 to 3 positive nodes.
I bam 76 and have 2 more years to go on Anastrazole so very anxious to get off them.
It is certainly worthwhile getting the test to check.
Barbara
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