Weekly paclitaxel for tnbc

Unlike most on this group I did not have radiotherapy. They said the mastectomy had sufficient clearance. Lymph nodes were removed and only one was affected. My paclitaxel was stopped after 6 sessions instead of the 9 that were planned due to extreme fatigue and neuropathy. Last session was end January and I went through a stage of no appetite which led to me losing 1.5 stone in weight. Now I have hair again, put on 9 lbs and eating for England so just the neuropathy to annoy me. I am now on ibandronic acid pills for 3 years.  Bit of a nuisance as the delay my morning cup of tea. Hearing other people I think I have got off lightly and now just waiting for my first call back for a mammogram. Onwards and upwards ladies. There is life after tnbc

carol

Hi Dcs1

Yes I had a tnbc tumour in my left breast but no cancer in lymph nodes. I had a bilateral mastectomy in March and pathology showed 1.8 mm of cancer left in tumour but it was removed with good margins. I then started radiotherapy at the beginning of June, once I was healed. That was completed at the end of June (15 sessions). 

It’s such a relief when you finish chemo but I felt even greater relief after surgery. 

good luck for next week

Emma xxx

Great to hear you are all done and I hope and pray your cancer stays away. My wife had the same, 3 years ago but it came back, now metastatic so no cure, just palliative treatment ongoing. I've since read a lot and there are lots and lots of things you can do to prevent metastatic reoccurrence. I wish someone would have told me that 3 years ago, I didn't read hence I didn't know. I'll never forgive myself for this, I'd like to let everyone else know. There are lots of books (happy to recommend to anyone who asks) about what you can do to protect yourself and create a terrain that cancer won't come back. Good luck every single one of you, I wouldn't wish mets on my worse enemy (not that I have any!) 

Leo and Susie

Hi there,

Im so sorry to hear about your wife. It’s so scary for you both but I’m sure you support each other.

I was interested about the books you found helpful…Are there any in particular?
TNBC is so scary….let’s hope they come up with something soon to help us all.

take care

Himalaya

Life over Cancer by Dr Keith Block, great start. Read that one, I'll keep recommending them! Good luck. X ️

I had a bilateral mastectomy in July and had my first round of Herceptin an Pejeta yesterday and my first Paclitaxel today.  Yesterday I felt really tired and sick but today I feel fine.  I'm also on weekly Paclitaxel and 3 weekly H & P.  I guess I still have to wait to see how I cope.

Hope you feel better soon carolab .

Many thanks for the prompt reply!

Himalaya