Good morning,
I am due to start chemotherapy for HER2 positive cancer treatment. I have had a mastectomy on 11.11.2020. The first sentinel node was found to be cancerous after the operation and then the tumour was found to be HER2 positive 3 weeks later (the test had not been done straightaway). From being told that I would not need any further treatment after the mastectomy, I was told that I would need radiotherapy and then finally, chemotherapy for a number of months before radiotherapy. A lot to take in.
I would like to communicate with members of this forum who have had treatment for HER2 positive cancer. Theoretically, my body should be free of cancer after the mastectomy and the removal of the cancerous node but because the cancer was aggressive, I am recommended chemotherapy with antibodies first and then radiotherapy to "ensure" that it does not come back although I understand that there is no such guarantee.
I must say that I have been terrified at the idea of having chemotherapy because of its possible side-effects and I would appreciate any information, experiences and advice from members who have had this experience.
With many thanks in advance,
Shanty
Northeast ten mins in car from where we live . We're lucky ten minutes other way are hills and moors .
So choice for exercise is coast or country.
So you asked how to get to chemo thread without the link you would go to
Breast cancer forum you can bookmark this it would be easier to get to
Discussion list .
Your original post is in
Questions about diagnosis and treatment
click on that heading
at the top are what is called stickies they remain in place at top
that us where you find chemo thread and radio thread
Spend some time having a look around the threads under the different headings I will be posting photos of walk in
" walking back to happiness " which can be found under ....ongoing discussions ..also there is "Awake " thread full of banter and humour as well as lots of support and info from those who have been where you are now .
Those of us in the Awake thread are known as Fruit loops for reasons that become obvious when you have a look at the posts .
Also click on your own name and go to profile you can then do a little bio about yourself and diagnosis / treatment it helps when people reply . Mine is on my profile which anyone can read if they click on my name .
Hi I am new to this forum. I was diagnosed in Aug 23 with an 18mm tumour in my right breast. HER2 positive. I opted to have it removed followed by radiotherapy but due to administrative errors I never received the radiotherapy. Exactly a year later 20/8/24 I had had a lump removed from the same place in the same breast & all my lymph nodes removed. I am still refusing chemotherapy. Can anyone tell me if they have experienced lymphodema & if the Herceptin has aged you looks wise & physical health wise? I know my prognosis is no longer good without chemotherapy & I am keen to understand if anyone has had it spread elsewhere & how they found out? Any help greatly appreciated. Not sure where or how to post this for the best response?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007