***OESTROGEN-REDUCING MEDICATIONS***

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I felt it would be a good idea to have a thread for this which people can use to ask questions, especially about side effects.  

  • Hair toppers look a good alternative if your hair is thinning, if mine gets worse I will definitely be buying one x

  • This might be of help. I had anal burning /soreness before I had BC and after being checked by the doc with no success, I narrowed it down to the toilet paper I was using. I changed to a Aloe Vera one and the problem disappeared. Now just use smooth paper. I have vuval  skin dryness and I'm ER+ so any advice welcome. x

  • I am due to start Letrozole, Abemaciclib and Zolendronic acid. I am worried about a lot about the effects they will on my body.

    I didn't realise that I was going to be given a chemotherapy drug. I had 6 cycles of. Chemo Last year and thought that was that. Will I lose my hair on my head. I will be on it for 2 years.

    Please let me know your thoughts and any assistance will be greatly appreciated. 

    Zad x

  • Hi, I'm new to this, but just wanted to say I am on Anastrozole about 4 months, I had really bad pains in my knees and lower legs  my BC nurse suggested that I take the Anastrozole at a different time,  I did take in the morning.....I thought oh yes as if that will make any difference.....well started taking early evening...and the pains went? Still have brain fog etc......but worth a try maybe?

  • HI everyone, I'm 37 and was diagnosed with BC in the summer, caught it early thankfully. I had 6 rounds of Chemo followed by a right side masectomy and silicone implant in Feb. I am currently NED but started Herceptin injections yesterday. I will need 11 more every 3 weeks. I was due to start taking Tamoxifen yesterday but I was too anxious to start it and forced myself to take it this morning. 

    Overall, I have been ok physically and mentally, I didn't have bad side effects from chemo, my surgery went well and I'm really happy with the implant. I lost every hair on my body which is obviously horrible, don't ever underestimate the importance of those tiny little nostril hairs!! I'm very grateful to be NED now. Sometimes, I feel like I 'got off light' in terms of side effects and I've been given a good prognosis so I know I should be grateful, I am overall but I find myself struggling about having to take Tamoxifen. The herceptin doesn't bother me because I already had been given that with chemo and I didn't suffer. I'm afraid that the Tamoxifen is going to be the thing that finally makes me feel sick.

    Can anybody share their experiences with me, the good and bad? How long were you on it before you started to get side effects?

    Thanks to everyone in advance, this community is amazing. Love to each and everyone of you. 

  • great news ChocolateChip! out of interest is the pain still improved?  I take mine in the morning.  I may have a go at evening instead.

    Best wishes for the future.

  • Yes it is PMA,   still pain free in knees and lower legs for a few months....but I have started getting really bad headaches and I am wondering if they are connected to the drug , I stopped taking for a couple of days and the headaches lessened significantly.....so not sure what to do now Shrug

  • Thanks for info, but so very sorry to hear of your headaches.  I'm always amazed at the negative effects caused by such a tiny tablet!! Hope you find some relief x  

  • Hi  , just a thought but I wonder if the headaches are related to dehydration? I have always taken my Anastrozole first thing in the morning as I’d otherwise worry that I’d forget. I drink a mug of water when I take it on waking, then have a mug of hot water as I fast for 13 hours overnight, followed by a very welcome mug of tea when my 13 hours are up. That’s a lot of liquid yet it doesn’t seem like it and I don’t seem to need a wee for a few hours apart from very first thing on waking (sorry if tmi!!). So it seems like I’m rehydrating. I have wondered whether one of the side effects of the Anastrozole is dehydration and that could cause headaches. Maybe as you now take your hormone treatment (can’t remember which one you take) at night, maybe you need to drink more when taking it? But I’m not medical so I think you should also have it checked out by your GP or breast clinic in case the headaches are a sign of something else. 
    I do get joint aches and pains but will stick with taking it in the morning as I feel like I’m used to that routine now. Hope you get it sorted, it’s all a bit of a minefield. Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hello HF,  I 'm sure dehydration is a side effect of Anastrazole which I take too......as it dries everything else out lol! I do tend to drink a lot of water but maybe not as much recently, so this is something I'll bear in mind.  Yes I thought the morning routine would be easier to remember  but my joints were so painful.....and I'm not at all stoic!!  Thank you for your thoughts much appreciated  x