Waiting fir results

Hi Burge23, so pleased my post has helped a bit!

My own lobular was self-detected. I’d noticed a very small lump at the very bottom of my boob after having a feel around because my bra was making  that area feel uncomfortable. I put it down to cysts which I’d had in the past  so thought I’d leave it for a while to see if it disappeared. It didn’t, so I was having a good look at my boobs in front of the mirror( as you do!) and when I lifted my arms up there was an indentation where the slightly painful fatty lump was.  Slight panic at that point so off to the breast clinic! They couldn’t see anything on my mammogram but when they did ultrasound on that area, there it was, in all it’s pointy jagged glory! A biopsy was taken and you know the rest of my story from there onwards. Not always showing on mammograms is another of lobular’s sneaky characteristics, I’ve since found out.

I’ll be keeping everything crossed for you on the 10th! Don’t forget to let us know how it all goes. In the meantime, just try and keep occupied, do stuff you really like doing, but really just be kind to yourself and just go with how you’re feeling .And don’t forget there’s always this brilliant site to  come to and vent, chat or ask those questions that always seem to come in to your mind in the middle of the night!

Love Zeto xx

Hi Haven’t been on here in a while but happened upon your post. I had a similar diagnosis.. lobular  cancer large tumour 35mm (I know a big tumour is scary)no lymph node involvement. Your post was 2 months ago so I’m sure you’re in treatment now and feeling are in control. You will get through this. Take it one day at a time and keep out of the dark corners of your mind. Stay in the light and find some joy every day. 
carol Xx

Hi sam

i feel I have had a very similar experience to you, I am also 33, I went back in April to the breast clinic and was told I had mastalgia and to change my bras, no scans took place at all jusy an examination,of course I ran out the hospital and was pleased it was nothing else.

as time went on my boob became very hard and sore and my nipple became inverted, I was finally seen again in August and had all the scans I needed. Was diagnosed with lobular cancer and it was 9.3cm so my entire right breast is covered, also spread to my lymph nodes, was all set to have a double mastectomy this Thursday the 10th. I went to see my encologist last Thursday, and was told they found something on my spine! So op has now been cancelled and I am to have a spinal mri on the 13th with a date of the 18th to start chemo!! I am so fed up with all the waiting it seems like an eternity and I’m so worried now if it’s starting to spread!! This Covid has really put some of us in the crap!

ive has a sore back for years but never thought much of it until  now, every ache and pain I get now I’m thinking it’s the cancer, so I totally understand what you mean.. 

your not going mad as I’m feeling exactly the same at the minute xx

I've had a double mastectomy , Getting it in two weeks, All the best to you ..