Newly Diagnosed

SBT 8 days ago

3 replies
492 subscribers
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Hi everyone,

I have just been diagnosed with a Phyllodes Tumour in my left breast, I am scheduled for surgery in May, and I'm not gonna lie, I'm bricking it. Has anyone had any experience dealing with a Tumour of this kind, I've been told it's pretty rare. Not sure yet if it's benign, borderline or Malignant. Won't know fully until 4-6 weeks after my surgery. I think the waiting for me is probably worse than the diagnosis. I'm kind of an overthinker, I know I should be positive as my hubby and daughter keep telling me, and I get they are trying to support me, but I can't help fearing the worst. I can't sleep, and I'm struggling to concentrate at work as it's all I can think off. I have my first grandbaby due in 10 weeks and and I'm petrified I'm not going to make it through surgery and never meet her. Then I pull myself together and tell myself I'm being stupid. I keep having reoccurring dreams about funerals. Could anyone tell me this is going to get easier? If anyone has had the same tumour or any advise I would be really grateful.

Thank you x

My Grace is Sufficient 7 days ago

Hi, sorry you find yourself in the club nobody wants to be in. I didn’t have Phyllodes tumour but another rare tumour that is hard to diagnose Tubular cancer. These are a good one to have as the prognosis is good. You are going through the worst stage now waiting on surgery and results. Don’t worry about the surgery, the anaesthetist wouldn’t take any risks. You will be in and out of hospital on the same day. You will be holding your wee granddaughter in no time. Take one day at a time and do what you like doing yo take your mind off things. Congratulations on becoming a nanny or granny!! Hugs

SBT 7 days ago in reply to My Grace is Sufficient

Thank you so much My Grace, this is the best place to ask questions and receive support. Just receiving your reply has literally confirmed I'm not on my own and I'm going to try and take your advice and focus on things I like to help each day. I will be a Nanny I think for now, but whatever she wants to call me in the future is fine with me! I had to google your Tumour, just like I had too with mine when diagnosed. You didn't say how you are doing, but I hope you are fighting fit and well. Very much appreciated. Hugs back to you too x

My Grace is Sufficient 7 days ago in reply to SBT

Hi, I’m fighting fit, doing well and nanny to 9 grandchildren!! X

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