Newbie ER+ HER2- awaiting Oncotype score

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It's been a whirlwind since I went to Nurse Practioner with a lump <7wks ago.

I'm now 3wks post lumpectomy & recovering well.

ER+, HER2-, micromestasis

At 49 & on hrt when I sat in that consultant room 6wks ago to be told its most likely bc, we just need to find out what. I pulled off my patch then & there and mirena was removed at gp following morning. I've been surprisingly ok with the symptons that prompted hrt 18mths ago (sore/achey joints, night sweats, anxiety, itchiness & vaginal dryness)

Oncology apt last week explained I'm borderline for chemo so oncotype test sent away. I came away feeling less gutted that it wasn't a treatment plan than I expected but a week in I'm struggling to keep myself distracted and still another 2wks to wait!

What are your tips for helping with the waits?

I keep goggling things expecting to preempt the test results & keep thinking they're going to tell me they've missed something (can you be diagnosed Stage 1 by mistake?)

Please help

  • Hi Cujo4498,

    Sorry you have found yourself requiring treatment.

    It's an anxiety provoking time.

    Like you I was her2neg erpostitve prpositive. However I was stage 3.please stay away from Google it's not up to date and worst case scenarios.

    I was diagnosed May last year. Have since had a lumpectomy and removal of sentinels. Chemo, radiotherapy and now on Letrozole and 6 monthly bone infusions.

    I'm in remission, it's amazing the treatments available now. The waits are always the worst. Try to do things you enjoy. Spend time with people who care about you. Pamper yourself you deserve it.

    Make use of the forums, macmillan, cancer care or Maggie centres.

    I wish  you well, happy to answer any questions I can. Keep us updated on your progress xx

  • Hi Cujo4498

    Welcome to the forum, I'm Daisy53 one of the community champions in this forum.  I'm sorry to hear that you have been diagnosed with breast cancer.  The waiting for test results is horrible and it can be easy sometimes to down a rabbit hole. Try to keep busy doing the things that you love to do.  Things I found useful while waiting for my results was to go out into the fresh air and go for a walk, I also found a good book and some nice music helped to distract me.

    Wishing you the best of luck with your results.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thanks Daisy53 & Missymolly

    I'm back at work which i hoped would help but here I am, distracted!

    I'm very lucky to have private health care & he did offer an apt next week but suggested a week later to be on the safe side for the test result but I'm so close to making contact because I forgot to ask if bringing forward the apt would be a possibility if results are in quickly. Would this make me look neurotic? 

    X

    • 49, ER+, P+, HER2-, Stage1, Grade3, invasive nst carcinoma & high grade DCIS, lumpectomy/snb
  • Hi,

    No it wouldn't make you anymore neurotic than any of us. We all want to know ASAP what wer are dealing with.

    I was to wait 2 weeks for my results but I remember they called me on day 8 then you wait another couple of weeks to see the oncologist. Depending on how busy clinics are. There are lots of waits unfortunately. But once in treatment it all runs seamlessly.

    Good luck, sending hugs xx

  • Hi  and another warm welcome to the forum. A club that none of us wanted to join but a great place for support and shared experiences. Great suggestions already from the fine folk here, would definitely second the ‘don’t google’! 
    Re phoning to ask if your appointment could be brought forward if results are in earlier, I’d absolutely do that. It’s totally normal to want to know everything asap. I hate asking for anything but if you don’t ask, you don’t have that chance of getting going a bit sooner. In the bigger scheme of things the timing isn’t a huge deal but for your own peace of mind the sooner you know stuff the better. We’re not used to putting ourselves first, but this is the time for it! Sending love and a big virtual hug, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi