Just diagnosed

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Hi everyone, I was diagnosed yesterday and just feel so lost and scared
I don’t even know what to say :( I just really need to speak with people who understand 

I’m 39, with 5 beautiful children - 3 still living at home. And a husband. But after the week from hell leading up to diagnosis he doesn’t know what to say to me anymore so it’s just silence - as my head spins and I’m spiralling scary thoughts.

I just feel so lonely 

  • Hi Lauzloo, sorry to hear of how you're feeling. It sounds like you and your husband ate struggling so It's great that you've reached out here for support. 

    I was diagnosed last February 2024.  I remember those early days as being so shocking and scary. It really did take time for everything to sink in. I began to feel more in control once I knew what my treatment plan was going to be.

    I don't know how much information you have with your diagnosis but the process can sometimes take a little while, as you undergo all the tests so that your medical team can develop your treatment plan.

    I encourage you to lean on trusted people in your life, use these forums and don't hold back on asking your medical team any questions you have.

    Wishing you all the best with treatment. Sending all the hugs xox

  • Hi  

    I’m so sorry you have to be here, but welcome.

    No wonder you don’t know what to say, and your husband too, it’s such a shock to get a diagnosis. Cancer is something we always think will happen to someone else and not us, and yet here we all are. That’s the first thing I would say, you are not alone. There are lots of wonderful people here and in other support groups who will be able to listen, share their experiences and give advice.

    Like  I was diagnosed in February last year and thought my entire world had collapsed. I genuinely believed life would never be the same again. But, with more information and then a plan in place I felt better by simply knowing what was happening and when. The scary thoughts are inevitable but hopefully they will ease when you know your plan.

    Keep talking and asking any questions. Sending love. x 

  • Hi, sorry to hear of your very recent diagnosis but glad you have found this forum so early on. I'm one of the community champions here and I just wanted to say hello.

    Reading your post I also thought you might find some of the resources that Macmillan offer to be useful as you begin to talk to people about your diagnosis. This can be really difficult and I found many people don't know what to say.   Macmillan offer a lot of info and booklets, but here's a link you might find helpful. Macmillan - talking about cancer link

    As others have said, please continue to use this forum to ask any questions or just when you want to rant or need a bit of empathetic support. Best wishes 

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  • I know exactly how you feel. I’m having a mastectomy on Friday. The time from the biopsy’s to getting the results and then possibly further testing like ct scan, breast mri is so difficult . I really struggled. Now I have a date for my op I feel more relaxed. I know I have the surgery and further treatment to get through. But it’s one step at a time. Do you have a date for getting more  info? Try joirnally and l phone the support lines every day if needed, I did x

  • I have ct scan Wednesday and I’m just petrified that they are going to find more throughout my body :( it’s all I can think about and I’m worried sick. Still waiting on mri appointment. I just want to get the treatment started so I can relax a little and give my mind a bit of a rest.

    thanks for the advice, I should try journaling.

    Good luck and sending lots of positive vibes to you for Friday x 

  • Thank you for replying. 

    I know the type that I have and that it doesn’t seem to have spread to any lymphs. I’m waiting on ct and mri to see if it’ll be chemo before or after surgery and to see if it’ll be lumpectomy or mastectomy. It’s the waiting that’s so awful isn’t it. My mind just goes to the scariest place.

    I hope you are doing well xx

  • Thank you Eebee,

    your words are encouraging xx

  • Hi

    I am sorry that you’ve had to join the club none of us wanted ti belong to but you are definitely in good hands as there are so many lovely supportive people.

    Like you I was completely freaked out waiting for the MRI and results imagining the worst,  be kind to yourself, this is a long journey and the waiting in between each stage is the worst, you are going to have up and down days and that’s ok. 

    I hope you aren’t waiting long for the results and have a clear plan of what’s next and take each stage step by step

    Hugs

    M

  • Gosh, I know that feeling. I was diagnosed in July 2024. You are incredibly strong to have come on board a forum to seek support this quickly. That (to me) shows how determined you are to look after yourself as best you can. You should be very proud of yourself. It IS terrifying - I think we can all attest to that...but you are not alone, Lauzloo, we are all here - together...

    Hang in there and only think of the very immediate steps in front of you - try not to think of everything all at once. That's the only way I've been able to get through the last 6 months. Tiny, tiny steps forward. 

    I'm sending you huge amounts of positivity Lauzloo. And a massive hug.