Another Newbie

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Hi there - I have been hovering in the wings since my diagnosis, and I am already grateful to this group for the support I have seen and the questions that have been answered, so I thought it was time to join you.

I was diagnosed with bilateral breast cancer, which is oestrogen & progesterone receptor positive, but HER2 negative. One biopsied lymph node was also positive for cancer. I am between mammograms and picked up one lump myself, then the second one was discovered at my first appointment. I went expecting “nothing to worry about” to having mammograms, ultrasound and biopsies, then the news that it was very likely to be cancer. Then the waiting, that feels like forever, but now my surgery is booked in for 3rd December (lumpectomies and some of the lymph nodes). After the initial shock, I am now relieved to be booked in for surgery - although very nervous. Trying to take one step at a time, but also overthinking everything! 

  • Hi TeeDee

    Sorry to see you on here but I agree the support is excellent and we are all in the same boat.

    I have a similar diagnosis and will have a mastectomy on 29th November.   Although feeling anxious I am relieved that the treatment journey is finally starting as it feels like a lifetime since my initial diagnosis. 

    I have had my pre op (one by telephone and one face 2 face) I am seeing my BCN on Monday,  final blood test Wednesday and OP Friday. 

    I know I will have 2 drains, armpit and chest.

    If you have any questions please ask, someone on here will know the answer or have some good advice.

  • Hi Harvestmoon

    Thanks for your reply. Yes, our timeline is similar, and by the time I am having my surgery on 3rd Dec, I hope that you will be recovering well. My pre-op etc is on Wednesday 27th. 

    I’m grateful for all of the advice and support on here, but sad that there are so many of us having to go through this. But, lots of positive vibes heading your way! 

  • Hi Teedee,

    I had the same diagnosis as you in May this year.

    I had my lumpectomy and sentinels removed in June, I was grade 3 so required chemo July to September. Then radiotherapy October. I am now on daily Letrozole for 5 years and to have bone infusions 6 monthly for 3 years.

    It's a worry all the waits fir results and treatments to start. I shared my time line to demonstrate how quickly you move from one treatment to the other.

    It's hard to stay positive and not to over think it's a horrible word. I could say the word cancer out loud to begin with I was so shocked and scared. But treatments are great nowadays. Iam now at the other side and getting stronger every day. I am also going back to work in January.

    Take one step at a time, be kind to yourself. Give yourself little treats and do things to distract your thoughts that give you some pleasure.

    I wish you well with your treatment and happy to answer any questions if I can.

    You can do this Muscle xx

  • Thank you so much for this, Missymolly - it does help to look at your timeline, and to hear you being so positive, despite everything you’ve been through.  I keep wondering what will be next, after surgery - but, until the post-surgery biopsy results are back, I can’t be sure. I’m definitely a forward planner, so I’m finding this “one step at a time” thing quite difficult! But, it is what it is - and it’s certainly good to read the positive posts on here. Thank you.

  • I am quite a control freak it took me ages to settle and take one step at a time. I need to know how when why etc. Unfortunately with cancer diagnosis that's not always possible.

    Depending on the outcome following your surgery. Where they will cut it all out will determine the next step in treatment. Fingers crossed you just need radiotherapy. However if you do need chemo it's not the most pleasant thing I've experienced but it is doable and the end result of still having a future is a bonus. 

    They told me my results after op could take 3 weeks however i think they called me on day 10 with results and possible treatment plan. They told me on the phone I would need chemo and arranged for me to see consultant the following week. I remember the waits being horrendous at the time. But when I look at my timeliness I have completed a lot of treatment in 6 months and now building up my strength and planning my future again.

    Be kind to yourself, good luck xx

  • Hope your pre op has all gone well and you are feeling OK.

    I must say I felt a whole lot better after chatting everything through with my BCN, seeing what the drains look like, getting a bag to carry it around in and my NHS softie and some more information leaflets.

    I'm currently looking forward to Monday when it will be over and I should be in the comfort of my own home even if not fully comfortable. 

    Wishing you all the best,  stay positive x

  • Thank you for sharing your timeline, and wishing you all the best for your recovery. 

    I too found it helpful as I am currently struggling with the life is on hold feeling, seeing things I would like to book tickets for next year and not being able to as I don't know whether I will feel up to it.

    Will have to become an expert at last minute deals rather my normal plan ahead!

  • Thank you. Panic this morning when my pre-op was cancelled just as I was on my way to the hospital. I was told there were no appointments available to re-schedule. But, at my later appointment with my BCN and physio, they pulled out all the stops, and arranged everything that needed to be done - absolute stars! So, I am back on track again, and very relieved.

    I will be thinking about you on Monday, and hoping everything goes well for you. And by the time I go in on Tuesday, your recovery will be starting x

  • Hi, were you told during your initial appointment that it could be cancer? I didn’t think they were allowed to say anything until they got the results ?

  • Hi I was told at my initial appointment once they had done the mammogram and biopsy that it was cancer. The biopsy was to inform of the type. X