Birad 5, told me I have cancer

  • 14 replies
  • 502 subscribers
  • 714 views

I had my appointment at the breast clinic today. I had a very long ultrasound, a mammogram in every direction possible, another ultrasound, a biopsy, a lymph biopsy, a metal thing put on the lump, another mammogram, then went back to talk to the consultant.  She said" I'm sorry, it is cancer. and we're going to do more tests while we waiting for the biopsy". I asked if they can say 100% that it's cancer without the biopsy results and they said of course they can't say 100% it is, but I need to be prepared for it to be cancer, and they rated it as birad 5.

I've now been signed off work as I couldn't face putting on a brave face and my work's quite physical and requires a positive and focused attitude.

Now I'm waiting for an MRI. And she came back during the nurse discussion to say they will want another biopsy of a suspicious area near the lump that is changing?

They actually said that the indent I went to have checked has nothing to do with the lump that they did find, that it's very small and I was very lucky to catch it early and it's very treatable.

 I'm still in disbelief it doesn't quite seem real and I still hope that the biopsy is clear but the way that they spoke to me about treatment and being prepared, to me it seems that they are sure it will be cancer.

Can they really be that sure? 

I felt the mood change during the ultrasound and I was getting a lot of looks and sympathy before I was even told anything but it's still come as a shock I thought that the indent I found would be benign and it is, yet they're found what they're saying is cancer. They said the lymph node was likely nothing as the lump is so small, but it has to be checked of course.

I don't know how to tell my husband, I've been in limbo imagining the wording. Or who or how to tell anyone else, should I wait for the results? She spoke like the results will tell us what type and how to treat ect, so seeming very certain it is cancer.

  • Hi, it is shocking when you get told . When they did my biopsy , they said they weren’t sure but “ if it’s cancer, it’s treatable . I don’t think they tell you unless they are pretty sure . Sleep wiCry get better , I didn’t sleep a wink the night I got my diagnosis . The quicker you get your tests and scans , the better for your head . Waiting is the worst Cry x 

  • Mine was scored 5 on both the mammogram screening that led to the recall, and the ultrasound. They have a lot of experience so know what things look like. The doctor who did my ultrasound and biopsies told me it was likely to be cancer although occasionally benign lumps appear the same way, so I should prepare myself for a cancer diagnosis. It helped me spend some time researching the different types of breast cancer, so that when I went back for the results, I was not floored and could also take in the detail of what I had and know what it meant. The biopsy does indeed tell them what type it is and therefore how to treat it. Ductal or lobular, invasive or in situ, grade, what receptors (if any). Mine was invasive Ductal grade 3 TNBC, so as soon as I heard that I was ready to understand I would probably need chemo. 

    I am sorry you are in this situation. I told family and close friends once I had had a few hours to process it, using the same words the doctor had used with me. 

  • That’s good though that you’ve got told a date and not in limbo. The sooner they find out what it is, the sooner a plan can be put together and treatment started if needed. 

    Yes, I didn’t sleep much after it all began… I’m an anxious person so this didn’t get better until I started treatment…

    I hope it improves for you  

    I have triple negative breast cancer but there are others out there that are hormone related. I’m not sure what they are so I can’t help unfortunately but maybe look on breast cancer now website and macmillan so you have an idea like coddfish has suggested xx

  • Hi. I’m sorry you’re going through this.  It will get better!!
    Once you have all the info and a plan in place, it definitely gets easier  

    The worst part of my journey so far was the confirmation (on my birthday) that I had IDC cancer. I knew when I went in for mammo/sonogram that it was cancer.  Nobody told me it was, but the extra testing and same day biopsy made me suspicious. Then they gave me the pink folder! I waited a week for results. Her2, grade 3.  I freaked out. Only my husband and best friend were told. I had lumpectomy 2 weeks later and managed to go to work, Christmas parties, etc One of my children lived far from me so I waited til we were all together for Christmas to tell them. Merry Christmas, kids!  It was one of the hardest things to do.  Fortunately, I already had surgery and had no node involvement so I felt confident in the news and looked no different, except shorter hair. .  Unfortunately, I was too scared to tell my siblings and close friends, so I made my husband do it.  I knew they’d be sad for me and I would have felt bad for hem, knowing I was the cause of their distress. Taxol and Herceptin started late Jan.  I did cold capping, and it was 100% effective for me (I should not have cut 5 inches off my hair).  I worked throughout and still do. I told my husband I didn’t want people to know. Not my co-workers, neighbors, etc and to this day they don’t know.   Still on Herceptin every 3 weeks but nearing the end.  I hope your journey goes as smoothly as mine has so far. I don’t know how I would have dealt with this without the support of my husband, children and friends.