Grade 3 invasive lobular breast cancer diagnosis

• Hi , I had grade 2 lobular . 
  Mine did not show on a mammogram . Lobular is missing a protein, it doesn’t form a lump but grows in a line or like a spiders web . MRI is pretty standard for lobular . Mine was 1.5cm estimate but was 2cm after lumpectomy . I had found a lump . It’s hard not to worry or think the worst. You will know more after MRI X 

Thanks for your reply and I hope you are doing okay. The only issue I had was a lump about 2cm which was considered to be a benign fibroadenoma at the ultrasound. I had the results of the biopsy of the lump today and was told it was a grade 3 invasive lobular cancer and I will have to go for a MRI as they want to determine if it is anywhere else. Of course I have then looked into this and it appears that if it shows as a lump it’s more advanced. Apologies for rambling I am just processing t

I had found a lump 18 months prior to diagnosis

. 2 medics ( NHS and private ) told me it was a cyst . No biopsy done .

The lump remained but earlier this year , I saw a slight imperfection on breast skin . So , I did have a lump .it’s  hard not to fear the worst. I had a breast MRI only . There is a group on Facebook called Linking Lobular Ladies . 

Thank you for your reply. I hope that everything is going well for you.  Just wondering if the MRI showed up anything further than the lump which you were aware of?  How has your treatment been since diagnosis?  

Hi . I’m just 6 months post op , radio finished in May. 
it was just the 1 lump and the post op pathology showed my lymphs were clear . 

Dear Mofd

i too have the same results I have another word in my Pathology report too Pelomorphic I think and yes I am freaking out too. So far I have been told my tumour (we think there is only 1 so far is 2cms  x 0.5 cms and no node activity. I am waiting for the same MRI but told it is a conical bra a bit like Madonna in 1990s. They told me I was lucky to have found it so keeping my fingers crossed that remains the same as I have read that this lobular version is a sneaky little B* so know you are not alone we are at the same just now and today is ok we are here and the sun is in the sky. Breathe and try to stay calm I shared previously I couldn’t sleep last night and started to go to a dark place so I got up came downstairs and watched Christmas movies that at least was better

Thanks all of this information gives me hope too as in the same boat stage 3

Hi I think I commented on another post already but I too have (had?) lobular.

felt a lump - after a clear mammogram in January. They don’t show up on mammograms often and often don’t present as lumps but I think in some cases you obviously can feel a thickening - which is what we must feel.

mine was in one node which was a shock as didn’t show up in any scan. This meant I had to have an oncotype test to check recurrence risk (which turned out to be quite low so no chemotherapy) but I did have 15 radiotherapy blasts not the 5 the originally told me I’d have. That was ok. 
I think (don’t take this to the bank) that most lobulars are estrogen positive in which case hormone treatment is the preferred option. 

there are some hard yards ahead not gonna lie but I’d say personally the waiting bit is the worst. 

im finding the out the other side but quite hard to tackle as you feel a bit she’ll shocked! Would you agree klf? 

Btw I think the MRI is standard procedure with lobular diagnosis because it’s so hard to see under mammogram. Please also don’t be surprised if they say it’s a bit bigger than they originally said as they are notoriously hard to measure. Infact I had to have re excision after my lumpectomy because they are even tricky to see operatively. I say this not to worry you - because one way or another they’ll get it out but just to hopefully prevent the freak out I had when told these cheery updates along the way! 

Hi . I had 5 rads . I found that hard emotionally , weirdly . 
the hormone blockers were going to be my nemesis . 6 months on , definitely. Particularly, when you can only “tolerate a particular brand and the chemist says there is a shortage .

im back at the gym and I only missed a few weeks at work during treatment but I’m part time , so I managed . 

i find the mental side the hardest to deal with and I have had some counselling . Mainly for someone to tell me to be kind to myself and not expect to be superwoman . 

mine was ER8 PR6. Oncotype said no chemo . I’m post menopausal.