Started my first cycle of EC on Thursday and have felt utterly awful the last two days. Like a bad flu. Any tips and advice to stay on top of the symptoms. Didn’t expect it to be this bad on Cycle 1!
Hi Giddy234
You poor thing to be hit so hard on round one. I know I was too but that was a different chemo drug and due to gastro issues (resolved once prescribed Omeprazole). Good old paracetamol staggered with ibuprofen throughout the day/night is how I got through a long with plenty of hydration and sleep.
Don't be afraid to contact oncology to tell them about a strong reaction/side effects, they don't give out medals for suffering in silence, they may have a magic wand with their prescription pad. Perhaps some antihistamine or something stronger than paracetamol? Give them a call, they would rather know sooner than later. I ended up back on the day ward with a drip due to dehydration as I couldn't swallow anything without causing pain, should have gone back to them sooner!). Learn from my mistake!
Hope it eases up for you, don't panic as my round 3 was much worse than my round 4, it doesn't necessarily get worse consecutively!
Hugs
BexF
Hi I had my first EC three weeks ago - it hit me the same day and for a couple of days afterwards. I slept quite a bit when I could and drank lots of water (couldn't face coffee sadly) did start to feel more myself on about day 3. My taste also seemed to go so I bought some fizzy/sherbet type sweets just to try and help. Sending you lots of positivity
Hi. I had my first round on Jan 31st and it also hit me like a train! I felt dreadful for about a week with sickness, dizziness, headaches and really tired BUT the last day or so I’ve felt much more myself and able to function! I have a 10 week old baby so she’s kept me going
Hi, I had my first EC 4 weeks ago. Had the third one today. The first one definitely hit me hard. Was okay on day of treatment and the day after, but for the next few days I felt exhausted dizzy and could hardly get off the sofa. This was after weekly taxol for 12 weeks which I'd tolerated pretty well, so it was a shock. I think for me, it was a lot to do with not knowing how I'd react and I kind of gave in to it. For the second one, I made a conscious decision to stick to my normal routine, but just take it easier and it seemed to work. Although i felt more tired and had less of an appetite, i coped a lot better. It is hard to keep your energy up, especially when food seems unappealing, but I try to eat little and often and keep hydrated. I have found for both rounds 1 & 2 that I feel better by 6 or 7 and then a lot better for the following week.
I hope your symptoms improve in the next few days and for the coming cycles.
Hi Giddy234
I finished my chemo in Jan but had 3 rounds of EC last year. It’s a tough one to get though and I found it really affected by head. Very dizzy and foggy brain and I had a day where I felt like I was losing my mind. I found CBD really effective in soothing my symptoms (especially when my mind was at its worst). Mine didn’t get worse with each round as I found it about the same. Paracetamol also helped at times.
Hope you’re feeling better soon. Lots of rest!
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