My sister was diagnosed in June and has has lump removed & lymph node. Had 1 week radiotherapy treatment and now on Tamoxifen.
She has been suffering from what seems like indigestion / reflux giving her quite a severe pain between breasts. Was prescribed medicine for indigestion but problem is persisting. She also has severe pain across her shoulders/ upper back, starts as a tingling sensation then turns to aching pain.
Has anyone else suffered any if these symptoms?
She keeps getting told this is not linked to her treatment but cant understand why it has started since her treatment.
Would be grateful for any feedback
Thanks
Hi, I too suffer with pain as you have described. My back went into spasms. I used to waken up in the morning very tense and without realising it I was tensing my shoulders while sleeping. It’s a very anxious time and my muscles went into spasms. I had to get physio for it. had a ct scan ten months after my surgery. I have been diagnosed with arthritis in my upper and lower spine.
Should have said I was told alll along that mine wasn’t linked and they were right.
Thanks for replying. I think my sister is probably tense at the moment which is understandable and I will certainly let her know what you have said.
I think although it isn't caused by the treatment, hormone blockers seem to magnify the pain for some. My knee flared badly with Letrozole to the extent that if I overdid things it found it difficult to get me up the stairs. Each oncologist has a sl different approach. The fist one didn't believe I had osteoporosis, because it wasn't in my spine.
It was the third one that prescribed Bisphosphonates to protect the bones. I had sternal pain and rib pain, but it went after a week. A chest x-ray showed I have mild scoliosis. Hormone blockers affect a lot of things for some and for others hardly at all. I am on a break from Bisphosphonates due to reflux, might have to have it intravenously.
It is scary at the beginning, one only has to check in here to see how many are affected. Being told it has nothing to do with the treatment might not be helpful, it's strange it started when the treatment started. I know I have some osteoarthritis in my knees. I have had an MRI spine due to my back going at time and it affecting my bladder. Anxiety can obvs make things worse. I think we may all have a bit of paranoia at times, for obvious reasons.
Hiya, I have a lot of shoulder, neck and upper back pain as I am tense due to unconscious guarding of the sore boob/underarm. Some massage therapists have qualified to do oncology suitable massage which can help a lot. Make sure they have the correct qualifications. Also look into pillows, especially if she is spending more time than usual sitting in bed, good support is vital.
I find swimming helps too, we have found a small quiet pool at a local caravan site which is warmer and cleaner than the leisure center pool, plus has decent steps into the water. The water carries the weight of my boobs and relieves the pulling sensation in the underarm.
Hope this helps, BexF
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