Terrified and no idea what to do

god love you teddy, its such a journey, and not a nice one, lots of support on here, and advice, the information overload was intense, lucky hubby came with me, i didnt hear half of it. every one says when you have definate diagnosis and treatment plan, it gets better, so praying that is the case, its the waiting and constantly being in limbo for the next phone call, the next results, up until 27th september, our life was so different.  the unknown is just flippin awful.  seeing the boob missing and the scar, and still not out the other end yet is so scarey for us.  but still will try to get my positive hat on, even if its just to give lovely hubby a break.  good luck with the ct scan, mine showed something else up in the pelvic area, so mri scan this week to see what this is, again very vague when spoke to the nurse regarding results, dont want to think the worse, but dont want to be as niave as we were when this all kicked off

big hugs x

Teddy5; Hello-sorry to hear you are terrified.

Take one step at a time - once you have had your scan, you will be given a treatment plan. From there you will know what’s happening and when. 

I had all those treatments- some bits are difficult, but only briefly, I had never had anything done before, never been to hospital but got through.

The hospital team was incredible , caring, gentle and helpful. 

It was 2 years ago, almost to the day, that I started chemo, which was my first form of treatment.

I got through and so will you.

There are some lovely people on here who will support and advise you.

Best wishes xx

I can kind of sympathise - im grade 3 in lymph node but stage 2 in breast - about 1.5cm big - had mri and ct last week, results thursday absoutely bricking it, and processing all of this is so hard and worrying if its spread - im imagining any pain ache etc is more than what i know now, I just want thursday over and done with - I am a planner, so this is way out of my zone, i need to know what is happening and not be left - if you get what i mean

Big hugs to you x

Exactly what happened to me! My cancer was initially thought to be around 18mm and after the surgery I was told it was nearly 5cm! That hit me even worse than when I was told I had cancer! So I went through a single mastectomy with immediate reconstruction in July and I am having my last cycle of chemo (out of 8) next Thursday. I too was terrified but I have to say it is doable, the whole thing is very doable. Waiting for the results is really tough though so fingers crossed for your CT scan and the very best of luck with your treatment!

Lana xx 

Thank you for all your replies. This is so much worse than the original diagnosis. I originally went to the doctor as I had a bruise on my breast that wasn't healing. Turns out that was just a bruise. The doctor noticed a firmer area in one breast but assured me it was nothing to worry about probably fibrous tissue but referred me to the breast clinic. There I was told it was likely to be cancer.  Then the results of the biopsy confirmed cancer but told stage one just a lumpectomy followed by radiotherapy. Then yesterday results are just too much. My lymph nodes are clear but now to have a CT scan. Worried they will find cancer elsewhere and the waiting is so hard. I have managed to stay positive until now but after yesterday I just can't pull myself back together 

Sending you a massive hug 

im At the hospital tomorrow for my scan results and I am praying that it’s not anywhere else

been told stage 2 in breast grade 3 lymph node and I don’t want it anywhere else

Can’t sleep or think mind is in overdrive x

I hope all goes well tomorrow and get good news

Hi TeddyS

i can understand your worry but if lymph nodes are clear, this should reassure you a bit. This should suggest no spread. It’s a horrible time waiting on results and treatment plans but try distract yourself in the meantime. Big hugs from me. Xx

1. Hi I was told after ultrasound scan my lymph nodes were clear but needed to be tested to be absolutely sure I had a cancer lump removed in my right breast, and  7 lymph nodes removed was in surgery for 5 hrs I had mastopexy surgery, the wait for these results were terrible this was 10 weeks ago, got clear margin results on cancer lump and ( my lymph nodes were clear ) i  had to have radiotherapy which i have just finished hope you also get good results xx