Side effects of chemo / paclitaxel and herceptin

Hi Lotts82 What lovely  supportive friends you have.  

My go to /can't be bothered to cook food is usually a pizza - have about three in my freezer at the moment.

And you are another solo flyer I see.  If you need support just shout - I am always on the end of the internet.... unless of course the internet goes down..... but thats rare.

Thanks so much Anji for your reply.

 That sounds good! I might check it out.

 I spent time with family today which was lovely and a wonderful MacMillan nurse spoke to me. I also did some of my CBT exercises.

x

I can totally get the pizza thing, quick and easy and always tastes good. 

thanks Anji, here for you too 

Hi Lotts, I had one dose of Pax, 3 weeks ago, felt fine and this week have experience so much fatigue and hair loss, this is after one, I read that chemo leaves your body after 72 hours so what the hell is going on after 3 weeks! Did you have mega hair loss? X

I am 2 down of 12.herceptin & pax.scalp very sensitive.Have headaches painful joints & poor sleep but nothing bad enough as yet to stop me carrying on.big hugs x.

Hi Marti, it sounds like you are on a slightly different regime to me as I have weekly treatment of paxy and monthly of herceptin. I’ve had 4 rounds of paxy so far and I’ve also been cold capping and no hair loss yet. Not everyone has been so lucky with cold capping so I’m feeling grateful although I’m aware it could go at anytime. My ‘bad’ days seem to be days 3-5 after weekly treatment which is when I guess the steroids are out of my system and I just feel headachy, upset stomach, slightly blurred vision and fatigue but sleeping terribly. How’s everything else going for you? x

That’s similar to mine, I’m on 4 now and my sleep is terrible, slightly headachy but the cold capping now feels pretty normal to me so I can do 2.5 hours without really noticing now. I just miss having energy :) glad you’re feeling ok. x

3rd tomorrow but hair nearly gone.Dont let it bother me though.Onwards & upwards fellow fighters.xx

omg this helped me so much. iam doing paclitaxel and the day after is like fine, on the first go was like this will be easy, then the steroids wear off and it hit me like brick wall. i was like wh?! on the other chemo ac it didnt hit the same, but then they get u to take steroids for days after.

im sorry you arent sleeping well, recommend a sleepy time tea and if u cant get melatonin, nighttime allergy meds may help and i dont think interact with chemo but you could ask oncologist. i took some in the summer to help sleep through

Glad it helped, it’s definitely good to know the effects of steroids when they leave your system. I’m grabbing some sleeping pills when I’m back in on Thursday and will try and get a better sleep routine. The night tea does help

hope you’re doing ok x