Hi I’m new to this and I feel so totally lost. I was diagnosed in May and on the 1st of August I had surgery, removing my lump in my left breast, all lymph nodes and a LICAP reconstruction. I still have both drains in and I’m hoping one will be removed this afternoon. I’m also still waiting for histology results, to see if I need chemo. I’m keeping everyone crossed that I won’t. it’s such a waiting game. I’m trying to get back to some normality but tiredness just consumes me, yet I spend half the night awake. I know I’m not alone but I feel it.
Hi Tippytappy and welcome to the forum none of us want to join. It is a waiting game unfortunately, but you are not alone. I am surrounded by people all day, but still feel alone, so I know how you feel. I think once the drains are removed you will feel a bit better. I think it is not having control over a lot of what you have to go through that makes it worse. The lack of movement, the tiredness and the not being able to sleep how you would normally that gets a lot of us. Over time it will all improve and especially once we get our results back after the ops we will feel a lot happier. All you can do is take it day by day and try to rest and do things that keep you occupied and happy. It’s not easy, I know. But I wish you all the very best for your results and your recovery. This forum has a lot of info, support and a place just to vent or ask questions on. Take care x
We've all been there and will agree unanimously that the waiting is definitely the worst part. Once you have an answer and a plan, things become more manageable. Be kind to yourself.
Hi sorry to hear your diagnosis, you're on a similar timeline to myself. I had my lumpectomy and LICAP reconstruction on the 2nd Aug. I had just one drain, taken out on Tuesday. I do feel a lot better with it removed. I've been given a date of 24th for results of Lymph Node Biopsy. Have you had a date for follow up?
The sleeping (or lack of) is really bad. I am so tired during the day and think I will definitely sleep tonight - to end up lying awake all night.
I'm taking comfort in everyone else's stories on here knowing I am not on my own and I'm not going mad. I think it's difficult for people around me to understand how I'm feeling and how to react to my rollercoaster of emotions.
I don’t have an appointment for my results as yet but I’ve been told it will be 18th August. Apparently once they get the results, they discuss you with the team on the Wednesday, then they will phone you with an appointment time.
I totally get where your at my lumpectomy surgery was 3 weeks ago and I just got my histology back and I get how your feeling it’s the waiting that is the worse part isn’t it . But you will soon get the results and once a plan of action is in place you will feel more in control and hopefully will sleep better at night . Hope it all goes well for you x
Hi TippyTappy , lovely replies already from the fine folks here, just wanted to add my support. This forum has been such a support for me, and I’m still rattling around it nearly 5 years on. My ‘active’ treatment is done but I’m still on hormone blockers which bring their own set of challenges. Cancer can be very isolating so I hope you find that you feel less alone now that you have joined this community. We’re still all different in our exact circumstances and treatments but at least here we have more of an idea what we’re all going through, whereas however well meaning our friends and families are, they often really have no clue what it’s like. Sending love and a big virtual hug your way, HFxx
HappyFeet1 xx
Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
Hiya. As others have said you are most definitely not alone on here. There's even an awake thread for those who are maybe around at night. Not uncommon to have insomnia and sometimes the drugs we are given don't help with that either. Take it easy while you are recovering from surgery remember no lifting and do any exercises you have been given when you can. When you have your plan and if you want to share on here. Although each person's plan and journey is very individual there is likely to be someone on here who has maybe had similar in terms of chemo drugs. And don't use Dr google for research. Either phone Macmillan nurses or ask away on here. Dr google can be rather frightening. And also when you have your plan if chemo is involved your oncologist will spout off a whole list of potential side effects as you have to sign consent so they like to tell you everything. You may not get everything they tell you. I certainly didn't.
