New to Community and feeling isolated

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Hello all

I was diagnosed with breast cancer in early May. I had what i thought was another cyst but, scans and mammograms ,plus biopsies of my lump and lymph nodes showed breast cancer. I had a lumpectomy 6 weeks ago, two of my lymph nodes were removed too. My histology report came back 3 weeks later. The lymph nodes were clear but the cancer had spread to the other side of my breast. I underwent further surgery last week and my consultant removed  another 3 mm from the infected tissue.

Since then (I'm 5 days post op), although i am recovering well physically, i am struggling with my mental health.

I can only describe the feelings that i have as being akin to grief. I'll be absolutely fine then feel terribly sad, sometimes waking in the night crying.

I have details of local support groups but feel like a fake. Lots of other people have a much worse diagnosis, i haven't lost a breast or undergoing chemotherapy. I don't even know at this stage what my next course of treatment will be. I'm dreading getting further bad new at my next consultation. 

I have always been a very positive and proactive person and until my last histology report, i was dealing with my diagnosis really well. Second time around it has hit me hard and i feel alone and isolated.

I'm usually a really happy person so please don't let the above put you off from replying!  I think i just need someone to validate my feelings. Thank you

  • Hi Imamum06

    Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer.  What you are feeling is perfectly natural.  Please don't feel like a fake, you're not, you may not of had a mastectomy or are not as far as you know having chemo but you still had breast cancer and that's scary at the best of times.

    While you are a member of this forum and the online community you are not alone. Plenty of us have felt what you're feeling and we completely understand where you are coming from.  You find plenty of support should you need it from the lovely ladies and gents on this forum."

    If you are finding it hard to sleep at night there is a thread called the "Awake" thread where you can say anything you like and you won't be judged.  The thread has been going for over six years and has seen people come and go.  I contribute to that thread myself and I was make most welcome by ladies on that thread.  Just hit reply to any of the post on there and you will be made most welcome.

    Wishing you the best of luck with whatever comes next for you and with your next appointment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thank you so much. Your reply has made me feel a little better about things. I guess things will get better but its gard to think like that sometimes. Ill check out the 'Awake' thread too.

    Always happy to hold a hand.

  • Hi Imamum06, I can so easily relate to what you are saying! I feel exactly the same! I feel positive and then all of a sudden I feel overwhelmed with what is happening to me and I cannot stop crying. I had mastectomy with breast reconstruction 3 weeks ago and now I am starting chemotherapy and I am terrified! There are so many amazing ladies here who have been through the same ordeal and talking to them is reassuring and helps a lot. None of us wants to be here but we are here and the best thing we can do to help ourselves and give ourselves a better chance to fight the disease is to stay positive and hope for the best! Lots of love, xx 

  • Thank you so much. You sound like i did a few weeks ago. I hate what this awful desease has turned me into. I'm going to attend a local support centre next week. The positivity on this forum has inspired me. I wish you well with your journey. You are all so incredibly brave x

  • Hi. As others have said what you are feeling is completely natural. And sometimes having a negative outlook can help believe it or not. Hubby and I were trying to be positive when I first got diagnosed October last year. And every time I got bad news. So when we decided chemo was the best way forward we changed our mindset. Decided it was going to be awful and I was going to get every side effect going. I didn't so reverse psychology worked for us.  

    Don't be a stranger on here. There's always someone going through similar or around to answer questions. Keeping everything crossed for you

    Xx

  • Thank you. Yes, that makes sense. My husband is super positive, but that can sometimes get on my nerves. I'm guessing that's normal too.

    I've tried not to google treatments as i know that everyone is different and we all respond differently to treatment. I'm so pleased that you haven't experienced any of the dreaded sude effects. X

  • Hi Imamum06,  

    Welcome to the forum.  I feel exactly the same as you.  I feel a bit of a fake too. I have my lumpectomy and sentinel node biopsy on Monday.  Will have to wait for the results, but they do not think it has spread.  So radiotherapy and hormone therapy afterwards.  I do not think I need chemo or have a mastectomy.  As you say, a lot of the ladies have to go through far worse, so I feel very lucky in that respect.  But as others have said it is still breast cancer and we still have to go through treatments and cope with all that it entails.  I have up days where I am very positive about it all and then down days where I feel awful.  My family and friends  are very supportive, and I do not think I would have got this far without them.  Sometimes though, I just want to be on my own, and yes it does feel like grief, and even though I have people around me all the time, I too feel a bit isolated and alone.   I wish you all the best for your continued treatment.  You are not alone, this forum is great and will support you through it all.  Take care.  

  • This is exactly how i feel too. I hope that all goes well with you.

    I'm blown away by the support that I've received on this forum today. I just wish i had joined earlier. Thank you x