New here, recently diagnosed I guess

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Hi,

This is going to be a bit of an essay but I am going to share my experience since finding a lump on my right breast on March 26th. At the time I thought ooh that doesn’t feel right. I figured it was probably nothing but best get it checked out. I went to my GP and after examining she said it felt moveable and was very likely a cyst but because it was a lump she would have to refer me to the breast clinic where they would do a scan & I would get the results while there . So I thought all good it’s just a cyst.

I attended the Clinic on Wednesday and they explained that I would have an examination, mammogram & scan. On examination the consultant also said it felt like a cyst and that they would drain it if it was but she also felt a tiny lump under arm. At this point I still wasn’t worried & thought I was wasting everyone’s time being there & they would soon send me on my merry way. 

Mammogram done and onto the scan. This is where things took a turn, I could see a dark area on the screen within my breast and the scan seemed to be taking ages, going over my breast and under my arm over & over. I asked if it was solid and she said it was and that she was going to do a biopsy of the lump and an axillary lymph node. After this I was told to go off and get a coffee and come back in an hour for results. 

At this point I was getting worried but kept telling myself it’ll be fine. I was called back in after an hour and a half to see the consultant and there was also a nurse present. It came as a complete shock to the system when the consultant said that there were cancer cells present in the lymph node and she would be referring me to get a CT Scan & together with the results of that and the full biopsy I would have to see her again in a couple of weeks when they know what type of cancer it is to discuss a treatment plan. 

A what! I couldn’t believe what I was hearing, I came in with a perfectly normal cyst and I was leaving with cancer. I have been in a daze, I don’t know how I managed to get through work the past 2 days. Trying to let it sink in whilst waiting for a phone call with an appointment for CT scan and worrying about what the full results will show. I’ve read a few posts in this forum about waiting on results and it seems that most agree the waiting is the worst part. One minute I’m thinking maybe I misheard or they got it wrong and the next I’m thinking what if has spread everywhere. 

I am 45 years old and have a 14 yr old and 3 yr old, the worst part is thinking of them and how this will affect them. My husband is being as supportive as he can be so I’m very lucky that way. I’m trying to be as positive as I can but really struggling mentally at the moment. This forum helped a bit, so many people sharing there experiences and offering support. 

  • We are all here for you as you say. You got this. Remember no question is silly and if you need to talk to someone outside your immediate circle this is a great place to do that. 

  • It’s definitely the worst part, the diagnosis and the waiting game. I too went in convinced of a cyst as were they and walked out with a cancer diagnosis with more unknown than known.

    The best thing you can do for yourself at the moment is:

    stay off google

    Do things and spend time with people that make you feel good

    Not over think

    Get outside in the air and the light

    All will settle for you a bit more once you know more facts and have a treatment plan. There is so much support on here from us all travelling this journey.

    We are all behind each other and that includes you Pray.

    Jan x

  • Thank you. It has already helped a lot. 

  • I think I really needed to share and writing it down helps. So far the only people that know are my husband and one of my friends.
    I was going to as if anyone here has experienced such a quick cancer diagnosis after a biopsy. Thanks for the advice, I have already learned to avoid google! 

  • Sorry TAJ you find yourself here…I think my advice would echo what everyone has said and yes,,the waiting was agony but you have to go through it and you will come out the other side. I still haven’t processed it yet and I have more or less been through treatment now and had it all….my oncologist said to be expected as it all happens so fastbbut you are guided through and taken care of and when you are given your plan that will help and you take each stage at a time. I too went on the fast track bc pathway and they gave me an inkling it was cancer on the day of my screening, ‘ the lump was suspicious’ and they needed to meet as an MDT team and would let me know soonest. I think I would have heard quicker if I had had my biopsy at beginning of week as they meet on a Friday at my hospital so I had to wait the following Friday and it came via an invite to meet with the Surgeon to give me the results. It will be good to have someone with you as nothing seems to sink in at the time. That was the longest two weeks. I found telling friends and family hard as I didn’t want to spoil their day! I think I did a lot via email! Sending a virtual hug to you xxx

  • Thanks LifeslikeThat. Hope your treatment has gone well. 
    Having luckily never had cancer affect my life before I’m realising how oblivious I was to what so many people have and are going through. It saddens me to think of others feeling exactly how I am now but also comforting in a way to know that I’m not alone. 

  • Sorry TAJ I reacted with a hug to your last reply to me but  I pressed flag to moderator by mistake as well and it wouldn’t let me cancel it or then leave a reply to your nice response! It looks like they have removed. I suppose my only excuse is clumsy figures with a bit of peripheral neuropathy! 

  • Def take someone with you to major appointments. I have a super supportive mum and it was a huge shock to her when chemo raised its head. Her first reaction was you don't have to do it and what's the reasoning behind it. I purposely invited her to come to a face to face appointment with my oncologist so she could ask her questions etc. Really helped her accept what was happening. 

    A different idea I picked up from a support group at my work was to ask permission to record your appointments so you can listen back at home. Not something I had ever thought of.