Triple neg breast cancer

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Hi all ,if just been diagnosed with stage1 grade3 triple neg breast cancer,what a nightmare,the worry,ect,all I know is it's time to fight the fight,cancer isn't going to win ,mark my words

  • What an excellent attitude, you can and will do this. Xxx

    xxx

  • Hi there,

    We share the same diagnosis. I was diagnosed 2 days before christmas so I am perhaps slightly ahead of the game in terms of treatment - happy to share any experiences or answer any questions. You will find plenty of support on here - you may want to also join the triple negative breast group where you will find questions and discussions specifically about TNBC.

    You sound strong - you can and will do this.

    Jan

  • Hi Kick Arse 

    My name is Jemma and I am 32. I also have triple negative grade 3 stage 1 breast cancer. 

    I was diagnosed in febuary and am now three weeks into chemo.

    Happy to chat further if you would like. 

    Jem 

  • Hi Jem,

    Same diagnosis as me - what’s your treatment plan if you don't mind me asking. Im really curious how treatment plans are different across the country for exactly the same diagnosis.

    Jan

  • Hi Jan

    I have 12 weeks of Paclitaxel weekly and three weekly carboplatin and pembrolizumab. Then I am going onto three weekly EC for 4 cycles. 

    I am also having Gowerelin for ovarian suppression. 

    Ondansetron, piriton and dexamethasone as pre meds. 

    Jem 

  • Hi jem. I'm with the oncologist yomorrow .but my consultant tells me 3 month hard chemo then 3 month off less dose . A lumpectomy after then radiotherapy. Don't know as yet how much 

  • Hi . I hope you are getting there .do dread it all chemo but know I have to stay strong 

  • How do you fet over the sickness .this is my only concern 

  • Hi Jan. How do you get over the sickness . I suffer from gastritis . And dreadingbhowvitvwill effect me. . What needs are given and do yhey work

  • Interesting - thanks for sharing. I have started with 3 rounds of EC (once every three weeks, had 2 so far - next one due this Thursday) then I go on to weekly paclitaxel with carboplatin every two weeks for 9 weeks. Then lumpectomy (as long as genetics ok) or more invasive surgery of not, and then radiotherapy if I have lumpectomy. I wasnt offered pembrolizumab as my lump was 16mm and apparently has to be over 2cm.

    Im using the cold cap - working so far but who knows?

    Hope you doing ok on the paclitaxel - so far I have found EC ok - though spaced out and tired for the first week after treatment.

    Jan