Hi - new to cancer & new to Macmillan. Experience to date has been exceptional all round; it’s like being wrapped up in a warm, comforting, & truly knowledgeable community with all its diversity. Thank you.
Found the tumour on evening of Friday 13 Jan - shocked at its size as did regular checks - just how had I missed it! Called GP Monday 8:35; app by 9:25. Referral to Breast Surgery unit. 1st app Tue 24 - exam, mammogram of both breasts, ultra sound + biopsy of l. breast & axilla nodes, & bloods. Results: P5, M5, & U5 - tumour 10cm. 2 app Fri 27 - full body bone scan & CT scan upper thigh to head. 3 app Wed 8 - Breast surgery team - diagnosis: l. breast, ER+, HER2+, 10cm, grade 2 invasive lobular cancer with involved lymph nodes, no evidence of metastases. Allocated cancer nurse. Plan: 6 cycles chemo, mastectomy & axilliary node clearance, radiotherapy, and finish with hormone therapy.
The worst period was after 2 app, but once I told my daughters pressure lifted & I found my equilibrium. I started my research/reading, found: cancerresearch.org, macmillan.org, forcecancercharity.co.uk, breast cancer care.org, & a number of specialist medical sites. I’m now waiting for my oncology app tomorrow Wed 22. Never thought I’d be wishing to undertake such a punishing regime, but essentially it will made the surgical step so much easier & result in better outcome & ultimately the best prognosis.
Im feeling good, strong, & optimistic, but realise that I’m only at the start of the journey, no idea how it will go & grateful to be surrounded by so much experience & patience for those times when being me is not enough.
I’ve copied & pasted from my original post in the “general” forum.
Welcome to the forum and wonderful that you are full of positivity and that you have been seen so quickly and have a plan. Wishing you every success on your journey….. and yes this forum is fantastic if you ever feel overwhelmed, want to rant or simply ask any questions or advice……. Take care!
Hi, you sound so very much in control - I think that's fab. Your diagnosis is similar to mine. I blogged throughout though it's turned into a bit of a novel, but this post might be particularly useful for you before chemo. Best of luck
Thx for this. Read the post. I’m seeing oncology today, so will hear if they agree & if so what regime. I was told FEC & EC-T.
I have some shopping to do . Really loved the post. Where can I find the blog? On this site? Ana xx
Hi - thx so much. Read through your blog. So helpful/insightful. I know we are all diff & no idea how I’ll go, but I’m a “preparer”. Was expecting to have to wait some 2-3 weeks, but a slots come up. Both oncologist & clinical team know I’m chilled about the mastectomy, but focused on keeping as many of my nodes as poss. They are on on board with this - they like the way I’m thinking; quality of life is the nodes that are important. Family & friends are all on board for rotating caring.
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