Lobular breast cancer

Hi, sorry to hear you have to have chemo. In terms of expectations, it really seems to be very different for different people. I blogged throughout my treatment and this post Chemo blog link is everything I wish I'd known before treatment started. This might help give you some idea.  Best wishes 

Hi Lobular breast jou, I’ve been using the scalp cooling cap since I started chemo and have had 2 sessions so far. It does add more time to your treatment mine is half an hour before treatment starts and then another hour and a half after treatment finishes so it can make it a long day as I have bloods, see my oncologist and have chemo all on the same day. I found a week after my second treatment my hair started to fall out and I do have a bald patch on top of my scalp. I haven’t lost it all but it is thin. EC chemo I believe is the one that you loose the most hair with even using the scalp cooling cap. However everyone is different and some people may loose more or less hair. I decided to give it a go as once you start treatment if you haven’t used it from the start you can’t start it part way through. I wanted to try what I could to keep as much hair as possible so I gave it a go. Will see how I get on with my next treatment as it may be too cold to continue with it. If you use it you will need to take some leave in conditioner as they apply this to your hair to start with, plus a headband to keep your forehead a bit warm. The first 10 mins are the hardest whilst you get used to it, but you can have paracetamol and if you want they can give you something to relax you too. I take a snuggly cardigan and blanket incase I feel chilly but so far I haven’t as the chemo suite obs nice and warm. 
With chemo again it affects everyone differently. I have been very tired after it for the first few days but certainly not bed ridden. I do little bits and then have a rest and watch some tv, then I’m up and moving around again. I like to keep moving and go for walks as I’m petrified of blood clots. They will give you an emergency 24/7 number when you start chemo. Any side effects you can ring them, they will ask you lots of details and will be able to advise what to do. I rang it 3 times when I first started chemo to make sure what I was feeling was normal. I keep a diary and now I know what to expect on each day as it follows a similar pattern. You will be given meds to take to stop sickness and nausea which carry on for 3 days after. They do help. Take something to keep you occupied whilst having chemo like a book, puzzle book, phone, iPad with something to watch, AirPods,  snacks and drinks. It sounds a lot but you know what would occupy you so you may just want to take a couple of things. I generally chat with the nurse who is with my, my husband or just watch what’s going on in the chemo suite. I have a bag that I have kept packed so it’s already to go and I don’t have to repack it everytime maybe just adding some new snacks. 
Sorry there’s a lot of info there but I hope it helps. If you want you can click on my name and read my journey so far. Other people have added there’s too and it’s nice to see others journeys too. 

Wishing you all the best for your journey 

Hugs from cuffcake x x x x x

Thanks I’ve had a look, that’s very helpful. Wouldn’t of thought about changing toothpaste,  taking snacks etc thank u Xxx

Thanks u very much for all the information, really appreciate it Xxx