Suspected Invasive Ductal Carcinoma Breast Cancer

  • 5 replies
  • 474 subscribers
  • 607 views

GP called me this morning to say that hospital notes say biopsy results look like suspected IDC. He said they have been sent off for more information, so I still have to wait to be called by the nurse to go in for official diagnosis.

I’m so anxious and scared. I can’t face anyone today, just want to be on my own for a day. I won’t wallow for too long but I can’t help it today. 

The thing that is scaring me the most is that leading up to this (ever since I went to the doctor with changes to my breast) is that I’ve been having loud and clear “messages” that it wasn’t going to be good news and that possibly it won’t be a good prognosis/outcome. It all sounds supernatural and it sounds stupid but the number of things that have been said to me by people/my children who don’t have any idea of what is happening, can’t be a coincidence. I know that I’ve got a heightened sense of awareness, but these things were said directly to me and so obvious!! 

I just want to know what I’m dealing with and how bad it is. 

  • FormerMember
    FormerMember

    Hi RoseB38 welcome to the forum. I cant say why people have made you feel like that but I can assure you they know nothing of what is going on for you, even the Doctors dont know hence having sent this off for further testing.

    I  think we can all relate to your last sentence about waiting to know what you are dealing with and how bad or not  it is, but only time unfortunately will bring about both of these things and a plan alongside this to tackle whatever is there. So close those ears to anyone saying things to you because they dont know and you dont need to be hearing that whilst you are in this phase of waiting for results. xxx 

  • Hello RoseB38.  I suspect the majority of people here would agree that waiting for results is tortuous, and you'll feel more in control when you have a plan to deal with it in place.  I know what you mean about the 'messages' but think it maybe because you are very focused on your situation right now, and everything seems to relate to it; just about every library book I pick up at the moment has someone with cancer in it - I don't believe for one minute that someone is trying to tell me something, just that before I wouldn't have paid it much attention but now I'm attuned to it.

    Best wishes for your treatment.

  • Not knowing is the worst aspect of this process, and yes, it is normal to be sensitive to everything that people say to you and to think the worst. I had a biopsy which was suspicious of IDC, which is not much help tbh. They did a second biopsy, but this came back with the same result. In my hospital they try to avoid doing a lymph node biopsy unless IDC is confirmed - because otherwise it would be an unnecessary procedure which is why they went for the second biopsy. Evenutally after the tumour was removed, they were able to confirm that there was IDC, and I went in for a second operation to check if it had spread to the lymph nodes (it hadn't.) But the experience taught me to rely on pathology results, not on any hopes and fears.

  • Thank you,   I go for my results tomorrow. I’m expecting bad news but I hope it’s ‘good bad news’ if that makes sense!? 
    I’m feeling calmer than I have been - I think it’s just down to time. I am really trying not to let my thoughts and fears run away with me. 
    Thank you for sharing your experience. How are you getting on? Were you diagnosed recently? 

  • I was the same, I think I prepared for the worst and hoped for something better. I had to wait a while month after surgery. I got my result last Friday. I am grade 2 and stage 2 ductal invasive. Cancer was found in one of the thirty lymph nodes they removed. I have to wait another three weeks to find out if chemo is needed. Or just radiotherapy and hormone blocking treatment. It felt that a massive weight lifted. It is a waiting game. I have seen the breast cancer nurse 3 times and Macmillan Nurse twice. My arm is still tight when I lift it up. 

    Hope and prayers for all, that we get through this as well as we can. I have a friend who has had it twice. She's now 79 yrs old. Such a fighter. Inspiring.