Newly diagnosed

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Hi, first time on here, diagnosed on Friday, and my emotions are all over the place. Waiting to get operation on Jan 26th, remove lump and lymph nodes, then discuss further treatments. Finding it frustrating waiting for results etc. Just wondered how others are coping

  • Hi KittyKat

    Just wanted to commiserate on the issue of the ordeal of waiting. I was told I have breast cancer on the 8th of December. I’m still waiting for the results of my biopsies. My next appointment was given to me on the same day I had my biopsy and that is not until the 29th. I understand the demands on the NHS and am so grateful for its services but the waiting is interminable. It feels like time wasted when I could be getting treatment. I’m sure everyone feels this way and it’s part of this awful journey. I hope the time to your op passes quickly and you have a peaceful Christmas. X

  • Results day for me today.  Strangely had the best nights sleep for weeks, I think it’s because I’ve found the waiting very stressful and that part has almost ended.  Results and then they’ve booked me a haematology appointment straight after.   I’ll just be glad to know what I’m dealing with and get on with things. very best wishes to you both.  

  • Hello Ochno. So glad your wait is finally over. I don’t know yet if the waiting is the worst part of this journey but in the beginning it’s definitely the most stressful. I hope today goes as well as it can for you. Good luck! 

  • Hi kittykat72

    please be reassured that the first days of this journey are the worst.  You do readjust over time.  The wait is torturous.  
    i had my surgery in September, have just finished 3 weeks of radiotherapy and now feel slightly unnerved because it’s all over ……the wait between annual mammograms is now my enemy!!!! 

    hang in there… you’ve got this x

  • Well it’s as I thought, small malignant tumour.  I met with the breast surgeon who is scheduling tumorectomy for January.  At least I know what I’m dealing with now.  Calmer than I thought I’d be.  Onwards and upwards.  Let’s see what next year brings.  

  • Yes I agree the wait for results is agonising, then the wait go start treatment is just as bad! It's the not knowing, and uncertainty of what my treatment will be that's really getting to me, think I am just impatient! Hope you too have a lovely Christmas x

  • So sorry to hear its a tumour, but like you say at least you know now, and i hope treatment goes well and you have a swift recovery,  I was the same, felt calm  and actually a bit relieved the wait was over  if that makes sense, just want to get on with it and beat this awful disease. Hope you have a lovely Christmas x

  • I’ve just read the paperwork the hospital gave me, triple negative invasive ductal carcinoma.   She did try to explain during my appointment but I think I just wasn’t understanding.   She did say it was small and they would check lymph nodes during surgery.   Roll on operation date!  

  • I’m glad you are getting it sorted. I’m still in limbo waiting to know what the plan is. Hoping it won’t be too far into Jan before I find out.

  • Sorry if this sounds silly but what paperwork were you given ? When I went for my biopsy results I was told it was a lump in my milk duct and that I was booked in for lumpectomy I January, I have no other information apart from that I just feel very frustrated at the minute as I really don't know what's going..I thought I would have it all confirmed in a letter but nothing as yet x