Triple negative, grade 3, suspicious areas on spine

Hi BecP80  so sorry to read your post and it's so natural to be frightened. I certainly found dealing with the uncertainty to be the hardest thing. I hope your scan result comes quickly and then you will know what you are dealing with.  I was terrified when I was referred for a second scan and the waiting for those results, that was the worst.  I tried to keep busy and occupied and I had a good pep talk from a friend who is a radiographer who reminded me that the probability was low and even if it was bad news, treatment has much improved - that helped a little, but I didn't relax until I had the results. Hoping for the best for you, best wishes 

Hi BecP80

I’m so sorry to hear this, it must be such a worrying time.  I’m also 42 with two children (7 and 10) and also diagnosed with breast cancer (HER2) almost 4 weeks ago.   I completely understand how scary and worrying it is waiting for results.  I think it is quite normal to have a follow up scan to get as much information as they can.  I had an MRI for my breasts, then they also did a full body PET CT scan.  This full body scan showed something in my pelvis and so they had to do another MRI on my pelvis! Fortunately they think the thing in my pelvis is benign… but at some stage I will need a biopsy to confirm!  It is all very stressful but I think it helped me feel better to have more information from the full body scan.

Best wishes 

Sarah

I am sorry you find yourself in this situation. Cancer sucks, and TNBC in particular sucks. I have TNBC with a secondary on my liver. It’s tough waiting for results and for a plan of action. It’s obviously better for the doctors to find out everything there is to know about your situation now, rather than have it gradually emerge when knowing about it earlier might have led to a different treatment path. Unfortunately it takes time, and can set off investigations for things that aren’t actually secondaries. Wishing you all the best 

I’m really sorry that you are in this very scary place. I had to have an MRI scan on my spine as following the CT scan there were two ‘lesions’. They didn’t think they were cancer, but a tick box exercise had to be done. I was warned that at my age (I was nearly 60:at the time) the CT scan would likely throw up some kind of potential issue somewhere. Anyway, I had to wait a further four weeks for the MRI because I had a mastectomy and they couldn’t do it until some healing had taken place. Two weeks later, my results were inconclusive. They were sure it was not cancer, but I was referred for a full body bone scan to tick the final box. It turned out that they were right. The whole thing (three different scans and waiting for results) from start to finish took 11 weeks and was a grim time for me mentally. But … at the end of it I am really grateful that they were so thorough. X

Oddly I am quite calm about it. I only have 1 secondary at this point, it probably pre-dates my original diagnosis but we don’t know because I didn’t have a baseline scan. It is small and seems to have respond to Paclitaxel. It’s being removed next week through microwave ablation. Then I get scanned every 3 months and get to try immunotherapy (Pembrolizumab) with more chemo once something pops up.