Newly diagnosed lobular breast cancer stage 2. 34 years old

Hi Journeybegins- sorry to hear about your diagnosis but be assured that treatments are so effective nowadays.  You’re relatively young so they will throw everything at you to cure you - hang in there… you will get through it.  It’s a rollercoaster of emotions and no two days are the same so please reach out here if you need support. Sending good vibes your way xx

Woke up feeling sick. Think reality is starting to hit. Doctor said their aim is to cure me at the moment but I’m so scarred that these next two scans will come back showing that it’s spread everywhere. Also have no idea how to tell the kids. Kids are six and twelve. 

I understand - you will be terrified but you will adjust.  Why not wait till you have a definitive answer from your MRI before telling your kids although you could just say you’re poorly but you will get better 

my grandchildren are younger at 6, 6, & 2 so we’ve just said I’ve had “ the germs” as they understand covid as “the germs” and just accept that people get poorly with them but then improve

i was thinking of you through the night- I wish I could do more xx

Hi,

Just found your post and wondering how things were going with your treatment. I am 33 with a young child and currently going through chemo then plan for surgery. 

Hello,

im halfway through chemo and then the plan is surgery. I’ve just been referred to meet my surgeon. They originally said I had lobular cancer but I actually have IDC. I’ve just had 3 rounds of AC chemo and I start on taxol on Monday. How far through chemo are you? How are you finding the chemo so far? Saw my oncologist yesterday and she struggled to locate the tumour! Chemo must be working for me. 

I am her2 positive, so getting EC-T and phesgo. I start 2nd cycle next week. Overall i think i have coped ok with 1st cycle had a few rough days and back pain with injections. 

Thats amazing, must be such a comfort. Hows chemo been for you? Is your plan for lumpectomy or mastectomy? How are your kids doing through it all? 

Same chemo as me. I found the first cycle a breeze. The second was a bit rougher and the third was tiredness. The tiredness has lasted longer with the third one. I do think the injections make you feel worse sometimes. My advice is if you feel nauseous take the as and when sickness pills-they really do help. I’m about to start the T part of the chemo on Monday so I’ll let you know how I get on with that one. Not sure of lumpectomy or mastectomy yet as it depends the size of the tumour and also on my genetic testing. 
my 12 year old struggled at first but soon got back to being her usual self. They both worry about me when I’m not feeling great but ultimately we’ve just created a new normal for ourselves. The hair loss upset them but they are both used to it now. 

what is your plan for surgery? How is your child coping? 

I thought it would be good to connect as i haven't really been able to talk with anyone at the same age as me going through this. I will do that with antisickness meds as i suffered bad with morning sickness when i was pregnant. 

Im still waiting on my genetic tests coming back. So far, no one else in my family has had this. Has anyone in yours? 

Surgical plan is very much dependant on my response to treatment aswell.

My little girl is only 3 but shes mature for her age but so far she has no clue but the hair loss is my worry not sure how il approach it yet. When did your hair start to fall out? Iv had docetaxel before EC and cold capped so far no shedding but scalp is itchy so think it will come soon. 

I didn’t cold cap so it started falling out around 1.5 weeks after my first treatment. I just shaved it. It falling out was definitely more upsetting than having a bald head. I have wigs but they irritate me and I prefer the head things. I’m still not keen on looking at myself in the mirror but I am getting more used to it. Every now and then, Alice (my 6 year old) will say “mummy I miss your hair” but then just gets on with whatever she is doing.

my mum has breast cancer, she does from secondary breast cancer when I was 16. And her auntie also had breast cancer so I’m third generation. 

Hi, I lost my hair the second week after my first chemo, I actually wasn’t all that bothered, as I know it’s part of my journey and it will grow back., if you look on this macmillon website, you can get  a hairless dolly for free or a donation, it’s an upside down dolly that explains to your little ones about hair loss, I got one for my grandchildren, they are so lovely