Hello everyone. I was diagnosed in May this year with lobular cancer in my right breast after a call back from a routine mammagram
Im 63 years old and generally fit and healthy (or at least I was).
The consultant explained that lobular cancer doesnt always show on ultrasound so I had to have mri, ct and pet scans. These showed irregularities in my lymph nodes in my chest and also suspicious nodules in my lung.
I had an EBUS to remove some the lymph nodes in my chest, and tests showed them to be negative.
I had to have lung wedge surgery to remove two segments of my lung for biopsies, and again they were negative. The lung surgery was very invasive and took some getting over, and I still have a nasty cough.
I was booked to have a mastectomy (the tumour is 4cm)on 28th October but this was postponed because of my chest until 17th November.
The meantime, I have been taking letrozole hormone blocking tablets and apparently will have to take these for ten years. The side effects are awful. I have been plunged into a second menopause (I was taking hrt before diagnoses and had to stop.)
I've been told that they will take some of my lymph nodes under my arm at the time of surgery (all scans showed they were clear). The consultant has told me that generally lobular cancer responds best to hormone blockers like letrozole. However, if my tumour has grown to 5cm, or there is any cancer in the lymph nodes I will have to have chemotherapy. I'm terrified that the letrozole might not with and the tumour might be growing.
I feel as though I've spent the past five months having procedures and surgery that pierced unnecessary and this may have given the tumour time to grow.
I would really appreciate hearing from anyone else who has had lobular cancer. Who can help me to deal with the dye effects of letrozole.
Although I would, of course, appreciate any ones support.
Thank you xx
Hi.
I'm sorry to hear of your diagnosis and tests you have had so far. I was diagnosed in December last year after a routine mammogram. After a MRI CT and biopsies they found it was a 4.5cm tumour that had spread to 6 of my lymph nodes I had a mastectomy and lypmh nodes removed followed by chemotherapy and radiotherapy and am now on letrizole and ameclibeb.
I was also worried about it spreading further but was told it was slow growing. As in it takes a couple of years. With regards to letrizole I find that the side effects have started to subside now. If they continue to cause you side effects I think they can refer you to speak with your consultant to try changing brands. I you feel less worried and your starting to feel a bit better with your cough.
Sending healing thoughts 
