Breast cancer Uh

Hi Fiona_C22, sorry to hear of your diagnosis. I too am HER2 positive but also hormone positive too. I’ve had my lumpectomy and 2 sentinel lymph nodes removed. As one of the nodes was positive for cells I have to have a second op next week to remove the other nodes so they can get the whole picture to see if there is any further spread. I didn’t have chemo first, my journey started with the op first. Once nodes are removed as far as I understand I will then start my chemo journey. The chemo journey scares me the most as they all seem to have so many side effects. Everyone is so different, some people seem to have more reactions than others. 6 hours is a long  day of chemo. What reactions have you had?  How do you keep yourself occupied for so long ? Do you have many more cycles to go ? Sorry so many questions. That is such a shame about the cold cap. I hope you have been able to find lots of nice hats/scarves to use. You can click on my name to see my journey so far if you like. 
All the best for your treatment.

Hugs from cuffcake x x x x x

Hiya so sorry its taking me so long my chemo has been a nightmare really I've just done 4 rounds first one was the worst as I didn't know what to expect I was given a load of different tablets which I wasn't quite sure when to take Imy white cell count disappeared so I was so wiped out  I've had reactions to doxitaxel twice but they give me lots of antihistamines and cortisone to help now and administer slowly the last lot has left me with a heavy chest feeling they took me into hospital thinking I was having a heart attack but ecg was ok they sent me home with antibiotics for suspect neutropenic sepsis but I still have a heavy feeling it Hurts when I breath in doctor doesn't know what it is but it's not his feild I'm wondering if it's what they call  chemo 5fu which affects the arteries wish I knew what it is as its scary and I've still got 2 lots of chemo to do before the new year xx

Hi Fiona

I’m so sorry to hear about your side effects, that must be worrying. I’m also HER2 positive and about to start chemo possibly this week (waiting on resolution of an infection on my foot).  I had my portacath inserted this past week.  I’m sorry I can’t share chemo experiences with you yet.  Maybe in a few weeks.  I hope you resolve your concerns soon 

Best wishes 

sarah

Hi Sarah 

Sorry I'm hopeless with computers

only just seen your message how is your foot and have you had chemo yet ?

I've not been too good after chemo no 5 I've had covid aswell so I've been completely wiped out I look in the mirror and l look so awful I managed to get out today 9 days after chemo it's done me in though 

Hope to speak soon 

Kind regard

Fiona