Lobular breast cancer Stage II - what next…

Hi JoulesWelcome to the forum and sorry to hear that you have been diagnosed with breast cancer. While my breast cancer was triple negative I noticed that you haven’t had any answers yet so I thought I’d reply to you to put you to the top of the discussion. Hopefully some with the same cancer as you will be along shortly to offer you support.

Best of luck with everything.

Best wishes

Daisy53

Hello, I went for my routine mammogram on my 62nd birthday and walked away thinking, well that’s that then. Even when I was recalled I thought it was just an unclear image or something. Had all the tests, stage 2 lobular cancer..I was sent for an MRI, which I thought would just confirm the diagnosis but it showed areas of concern in the other breast, tests confirmed also cancer. Bi lateral lumpectomy and re excision later I expect the results on 1st November. The waiting is hard. One day I thought I could just sit here and wait, but you can’t. Family, friends, home,work all still there just the same. They are your life not cancer. Do you have a friend who you don’t have put on the‘it’s ok face for? I have one, took me a while to reach out, but found her waiting.  Hoping the very best for you 

Hi joulsG , 

I replied earlier but it disappeared for some reason..

Sorry you have been diagnosed with breast cancer.

I too had lobular cancer, grade2 stage 3 .my mammogram didn’t pick it up and it was 9.5cm so pretty huge . Apparently lobular cancer is very often missed on mammograms as it doesn’t form the usual lump , it appears in a more linear structure .

I finished all my treatment in July, mastectomy, auxiliary clearance chemo and radiotherapy.

I can’t actually believe I’m at the other side of treatment now and back at work. It’s been a tough year but with the help and advice from everyone on this site I got through it. We are stronger than we think. Everyone said you will feel better when you have a plan in place and it’s true . 
sending love and hugs xx

Hi Thank you for replying to me.  It helps to hear from others who have gone through all of this.  It's the waiting which is hard, can't think of much else at present....  I will do this one step at a time.  

Hi Hollyc - thank you for the positive thoughts, I am dealing with this in my usual quiet way, but the waiting is hard.  I am trying to keep busy and positive.  It's strange to think that so much has happened in 3 weeks.... I didn't know I had a problem then, but now I do.  It's hard to concentrate on anything at present....  walking helps though.  Good luck with 1st November, I see my CN on 2nd so hopefully things will be a bit clearer then.  Take care x

Hello JoulesG,

hope you’re appointment today has clarified things a little for you.and reassured you even if just a bit 

Hollyc

Hi Holly, thank you for asking.  Yes my visit to the Consultant went well.  I am glad I have been reading up on everything as she outlined what she was planning, from pre-op to surgery and what to expect after.  It looks like mine is now ducal invasive, and she is planning a lumpectomy with lymph node then radiotherapy and hormone blockers.  Surgery on 17th November.  I bought my post surgery bras in M@s yesterday.  I was surprisingly calm about this….  Glad we are getting on with this, there is less time to over think it all.  Take care.  Julie

Hi Joules my journey is almost identical to yours. I had a hardening in my breast back in April which I thought was possibly another cyst needing draining but had my routine mammogram around the same time - it came back clear which was odd.

 I started noticing physical changes so I went back, had an ultrasound and biopsy which diagnosed last month as stage 2 invasive lobular. I’ve had my MRI which also shows at least a second tumour and possibly other areas of concern. I’m having a single mastectomy shortly - I wanted a double but because that breast is clear they won’t touch it yet until all my treatment is done in case I get an infection for an unnecessary op which delays any chemotherapy which makes sense but I’ll also be having that removed next year. I’m seeing the surgeon again Tuesday to go over the operation. 

The waiting is the worse but I’ve been keeping super busy making soups and seeing friends and I’m keen to just get going. I’m trying to keep fit and healthy ready for the op and eating well (also having the odd glass of wine to keep me sane - with the approval of my oncologist!)

Feel free to keep in touch with me on your journey Joules - we will get through it together! X

Hi Diane, well it does look like we are on similar paths, and I am very happy to stay in touch with you.  I have found this forum very helpful and find it useful to have a few friends to chat to online.  As you say we will get through this together.  I hope your appointment on Tuesday goes well.  I have my pre-op assessment via phone next week, so everything is ramping up, but I'm ready for it.  Take care.  Julie

Hi lovely - how are you feeling after your op? You’ll be what, 6 days post op now? Hope everything went to plan for you and you’re home relaxing xx