Hi, I had a routine mammogram recently and was recalled. I am 62 and this is the first mammogram that I have been recalled. Today at the recall appointment, I had a chat with a rather matter-of-fact breast care nurse with an appalling "bedside manner" and pretty much told me that I had no option but surgery if my Results Day shows up bad news. Ok she is possibly right, but it was the manner she put it across to me. I have never in my life been in hospital and never in my life been "put to sleep" with a general anaesthetic and I am frankly scared out of my mind.
Today they did more mammograms of the suspect breast (RHS) and then the consultant doctor gave me an ultrasound. She said that I have a "couple of small calcifications". By the time I got back to me after-scan chat with the same nurse, this had changed to "an extensive area of calcification". That freaked me out even further.
I am booked in for a biopsy in the morning. Nurse Negativity tells me that it will be a "small needle". Then she said there will be a dressing on it and I shouldn't do any heavy lifting for a couple of days (well, that's my job - so I've had to advise my manager that I need a couple more days off work now) because it might bleed if I exert myself. I said, I thought you said it was a small needle? She said, "yes but we have to cut a half centimetre slit in order to get the needle in." Cue for freak-out from me. I HATE THAT NURSE!!!
Anyway - I had a lovely friend, who happens to also be my next door neighbour, with me. She is coming with me tomorrow and has promised to be with me throughout this journey wherever it may lead.
Results Day will be on 1st November when they will tell me if I have to have breast surgery or not as it seems this is the only option they will give me if the calcifications are pre-cancerous. I am freaked out because an "extensive area" implies that they will have to take most of my breast off in order to remove something that cannot be seen that might only be pre-cancerous and may not even develop into cancer but as they won't know, they will still take the drastic option and I might have to be mutilated and run the risk of not waking up from anaesthetic, for nothing? Having never had general anaesthetic, and knowing that rarely people show up allergic to anaesthetic, that in itself scares me rigid. I cannot know if I will be one of those very rare people who suffers and allergic reaction to anaesthetic.
I guess I feel fortunate that I've made it 62 years without any hospital, and surgery, any illness, and health condition. Many people are less fortunate and have health problems from a much younger age. However, I keep thinking, why couldn't this have waited another ten years until after I retired and had done more things in my life??!!
I am really scared and feel so grateful to have my lovely friend Margaret but even if on Results Day they tell me surgery isn't needed anyway, I feel I am going to need to talk with people now and in the future who are going on a similar journey as I am. Because if it doesn't get me this time round, if I have calcifications at this age then I will probably get more, and dangerous ones, in the future.
I am so unused to being ill or unhealthy. I don't "do" ill and am in denial of anything being wrong with my body but my lifelong luck has to run out one day and perhaps this is the day it does.
I recently lost my two closest cousins (male) both at a younger age than I am now. I have had a couple of years more than they had, already. We were all close as kids. I am trying to tell myself I ought not to begrudge having a potentially serious illness when they are no longer with us. But I'm struggling to be wholly convincing.
I would love to talk with people who are going through the tests and possible diagnosis. I feel like I'm staring down a barrel and I also don't understand how if they remove chunks of my breast, they can call it a cure as once there has been intervention in my body and it's disturbed my cells and possibly altered my dna, I am worried that I would be at risk of the cancer returning in the future. Everyone I have ever known who has had surgery for cancer, has ended up with the cancer coming back, within a few years at most.
Sorry to rant on so much. I am really, really scared because I've never had anything wrong with me in my life and I don't know how to deal with this change in my body.
I had forgotten that she had had cancer. I can tell even from my own observations how much more advanced cancer care is from how it was twenty or thirty years ago. We are fortunate - if that's the right word - to be going through this kind of thing in the day and age where we stand a highly enhanced chance of a good long and quality life for many years afterwards. I always do live for the moment. I can stand outside at night and absorb the beauty of the full moon. I can walk my dogs and stop at each clump of grass or wild flowers along with them and enjoy the rich vibrant colours of nature. I will sit for hours on a hillside and draw in the beauty of the panorama in front of me.I am naturally a glass-half-full person in fact, but I have never ever had anything remotely serious happen to me, never been in hospital, never had general anaesthetic, never worn a hospital gown....I didn't think I would go to pieces yesterday like I did as I thought I was stronger but it really threw me for a loop and the Negative Nurse just about stripped me of any positivity I had been striving to hold onto. I have been a hundred times better today!
I did write that email to the Team at the clinic! They need to know how wonderful they are and how much good they have done me. It was like being cared for by a group of my friends and they honestly did treat me like Royalty throughout!
I had a much better night. No more butterflies now. I will deal with Results Day when I get there but it's not until Tuesday week. I have so much to keep me busy/look forward to, in the meantime: Trip to Hants tomorrow for a Dog Rescue Autumn Fair and to see my friends over there; Dog Show/Dog Swim in Bude on Sunday next week and then Silver Swans (ballet) class the day after.
Hi Maite, I think I too would freak out at Nurse Negativity. Good luck with your results day. At the moment I am waiting for a second op as I need to have my lymph nodes removed for further testing. When I had my tumour removed one of my sentinel lymph nodes came back positive. I am trying to come to terms and accept this as I know I am being looked after by a team of people who are the experts and know about these things and it all works. It is difficult but there are lots of us going through this and we will get through it.
I have been offline since 21st as my router crashed out and only just received new one today so I am now back. Alas I postponed my proposed Monday Results Day to Tuesday so that I could go to my Silver Swans class on Monday which is very healing for me....and now find a midweek email from the tutor saying she has double-booked and cannot run the class on Monday. It's one of those things but now I shall take myself off for the day somewhere on Monday instead, as I can't sit here all day and mope and shake in fear. I am really terrified of Results Day. They wouldn't have wanted to biopsy me if there were not something there to biopsy. I can only hope and pray that both areas are benign but I haven't had a good feeling about this right from the start. I hope I'm wrong...
When I had the ultrasound the doctor said that she couldn't find anything in my lymph nodes. Which was one huge relief at least. I am absolutely terrified of surgery as I have never been in hospital and never had anaesthetic and am terrified I might be that one-in-a-million person who has a reaction to the anaesthetic and doesn't wake up. Never having had it...how do I know I'm not? I cannot come to terms with this as I have always been healthy and never any health problems ever. I guess I should feel fortunate to have reached 62 before my body lets me down, as so many start having health problems long before this age. The only way I can get to Tuesday (results day) is by believing that the person who is going to hear the results on Tuesday, is a different person and is not me. I had two very bad nights, once I passed the stage of one week until results day. I went to bed with panic attacks and woke up with panic attacks. My dear friend Margaret has listened to me and hugged me and calmed me a great deal since those two days, and I've now reached the decision of disassociating myself with this person who has something inside their breast. Margaret has offered me Reiki (she is a Reiki master...and I have given and received healing myself over a long period of time, many years ago, so I know something about this) and I will accept that on Monday night as otherwise I don't know how I will get to Tuesday. Perhaps once I've been given the news, I can start to accept, but right now it's like this is happening to someone else and not to me. I figure many of you go through this kind of stage?
Hi Maite
That’s a good idea to go somewhere for the day on Monday so that you are not sitting at home moping about Results Day on Tuesday. Hopefully both areas will be benign but if they aren’t know that your medical team will do everything in their power to make sure that your get better.
Enjoy your day away on Monday and best of luck with your results on Tuesday.
Best wishes
Daisy53
Thank you. I will honestly be the happiest person on this planet IF both areas are benign!! but I also know that even if I dodge the bullet this time, now that I have these calcifications present there is always the chance that my luck will run out next time instead, or the time after. I have never been scared of my mammograms...that's the one thing I've always been diligent about getting done and I've always of course had an all-clear so never any reason to dread them, but in future I shall be dreading every mammogram. They told me that at my last one I had a little bit of calcification in that breast. I'm glad they didn't tell me that at the time! as I would have spent the next three years worrying about that and probably demanded an annual mammogram, which might have shown this up a bit sooner but then I would have lost a year, two years, or whatever of enjoying being healthy. Something else I have probably got to learn to do is trust the medics. At the moment I am of the mind that I know my own body best. But this may not always be the case and this is perhaps the wake-up call for me in that respect. Margaret said that did I realise that there is a reason why my internet threw me off for the whole week? and I said, oh I already figured that out!! as I would have been up all night every night googling the minutest details over and over again and would have scared myself absolutely rigid - well, more rigid than I already am, I mean!!! I've nearly finished a whole Peter James during my enforced offline week and I have two more in the wings to read so perhaps this whole thing is a total wake-up call for me to slow done, take Time Out for myself, and as Margaret says, whatever the outcome I should seriously work on reducing or eradicating my long hours at work as it's very physical and I love it, but I have so much else to do in my life and with my Girls and a tiring 36-hour week doesn't leave me many free days or much time for quality sleep. IF I get the all-clear (this time, anyway) I am going to re-evaluate my work/life balance asap. The alternative is that I may be actively forced to do so. There is a reason for everything in life and sometimes we can't see that reason for a long time but the reason is still there. There are indeed several reasons why I am going through this and I can see some of those reasons already. (Even if I don't want it to be true!)
Hi Maite, everyone handles things so differently and I am sure there are others out there who also look at it that it’s someone else not them. If you do have to have an operation you will be in good hands. An anaesthetist will be with you throughout the whole op making sure everything is ok. That will be good to go somewhere nice on Monday, do something you love to help take your mind off things. Maybe a friend could come with you too. Good luck for your results day
Hugs from cuffcake x x x x x
Well, the absolute unbelievable has happened!!! - I have dodged this bullet!!!! I feel better than if I had actually won ten million on the Lottery!! I had a message on my voicemail when I got home last night, from Nurse Janice, who actually didn't sound as negative over the phone as what she said was, "please ring me back today if possible as I may be able to save you a journey tomorrow, as I have some good news for you!" I rang and left a message but at 6pm she had obviously long since gone home. So after a sleepless but very very relieved night of re-evaluating my life in the light of her cheery positive message, I rang her at 9am to confirm that I had indeed heard her correctly and that I wasn't still in the middle of some very bad dream! She confirmed there is a letter going to my GP and a copy to me, and that I will be put back onto the 3-yearly mammo programme. There was a lot more calcification than at my last scan, and the areas of concern were densely calcified; but the biopsy results showed both areas have no evidence at all of any malignancy. I said I would ask the GP if they would allow a shorter interval (one year or even two years) as after this scare, I have realised that 3 years is actually quite a long time in terms of changes in one's breasts.
This has been one dreadful nightmare for me and it has really made me re-evaluate my life and specifically my work-life balance. I have calculated my current finances allow me to request a reduction in working hours (my work is very physical: in a village store, I do everything from admin to shelf stocking to hoying large boxes of stock around to serving customers of course and everything else that goes with lone working when you are running a convenience store and post office). I spent half the night planning my email to my manager and have now put in for a reduction from 36 hours to 20, on amended contract. This experience has given me the fright of my life, and has really been a wake-up call that I need to reduce my work activity and regain a better work-life balance with more time for myself and my Girls. If I don't deal with the physical and often also mental stress that I know I am experiencing at work - even though I really enjoy my job, I still recognise there is a lot of stress in it much of the time - I fear I will not dodge the next bullet that may come along as a result of my lifestyle.
I have never been as scared in my life as I have these last few weeks. There are reasons why I have had to go through this, and reasons why I have come out the other side unscathed, whilst so many other women are not as fortunate.
I can't thank you all enough for listening so patiently and empathetically to my rantings and soaking up my fears. Everyone who has read here and/or replied here - you have all given me so much support and strength and I was beginning to accept that if you can all get through this, then so can I.
I will branch out onto other threads because I feel there is a lot of understanding I can offer to others who will be going through what I have experienced.
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