Simply petrified

  • 9 replies
  • 474 subscribers
  • 728 views

Hi, 

I don't actually know what to say, it hasn't sunk in.  I'm petrified that I do know. It's hard to say what I have. I've only said it out loud once as to why I was having an early covid jab. 

I was told on 16th September about level 2 lobular breast cancer, oestrogen positive.  I've a small 1cm lump with a  'grey' area that is changing also.  A mastectomy is happening which I'm fine with, I just want it out. On the ultrasound nodes looked ok but finger crossed they will test ok during the operation too.  Until the op I'm on the hormone drug. If its found in nodes, out they come and radiotherapy and also maybe chemotherapy.  

I've two children 3 and 6, I'm so frightened.they are the most beautiful and caring children inside and out. I keep crying when I look at them, I'm finding myself sleeping with my youngest so I can just be close to him. They can't grow up without me.  It's not fair, it's so unfair.

  • Hello and welcome but sorry you find yourself here.  We are a supportive group of current and past cancer patients.  Click on posters name and you'll see their profile.  Due to investment into research and treatments breast cancer us treatable and has good success rates for the majority.  So while what you are telling is common at the moment you can stop planning your funeral as you are not checking out yet !  
    As your treatment plan develops and progresses you so start to feel calmer and more in control xx

  • Hi  I think it¡s pretty normal to be terrified, but as Grogg says, the treatment these days is amazing and many people live a long time after a breast cancer diagnosis. I had a 55cm lump removed over a year ago and just had my first annual mammogram, which was clear.  I am back at work (well I never really stopped) and have a full and busy life.  Honestly, for most of us it does get easier, just hang in there in these early days. Best wishes 

    Community Champion badge

  • Hi,  thank you.  The word Cancer, is such a scary word. I watched Father die....non hodgkins 20 yrs ago which was awful.  Its so hard for me to think positive and I really want to.  Is there material out there to help with the mental load of all of this? Xx

  • That is so good to hear. I'm so happy for you.  

    I only hear of bad stories from cancer, I don't hear many good ones, hence why I'm so negative 

  • Hello.  I found this site the best to calm me but others might have suggestions,  The word cancer terrifies us.  I lost my mother 34 years ago to bowel cancer then 10 years ago my sister to brain cancer,  They both died within weeks of diagnosis so when I had my diagnosis 7 years ago I assumed the worse but here I am 7 years later still annoying my hubby & daughter.  

  • Hi, I wonder if the page below help you. Macmillan offer all sorts of resources like this, can you can also call them or use their chat function to speak to an expert. I think the bad stories make the headlines, but there are many many positive outcomes too, just like Grogg and myself.  Best wishes 

    Link to Emotional Support

    Community Champion badge

  • Thank you so much.  The waiting is horrible isn't it.

    I had an ultrasound which showed the left-side and both armpits were clear but they will test the nodes to make sure. 

    I find it hard to trust the Dr's, I know I should.  This is so hard, how did you get through this waiting period? X

  • Hi, I kept busy, but it was really hard.   I work full time and I continued as that helped to distract me. I also had no signs of spread and when they removed the lymph node during surgery it was clear. I got on well with my breast surgeon and oncologist, so I had a lot of trust in them.  Oh, and I walked a lot, that helped too.

    If you want to read my blog, it's on the blog section on here and it's called One Life Live It.  It's upbeat, pragmatic and might be useful.  Hope you aren’t waiting too long now

    Community Champion badge

  • Hi lilred i hope you are ok. Itd such a shock to hear the words cancer. I lost my mum to cancer and also saw how chemotherapy treated her badly. Just one dose..so when i was told i have invasive dci and would need chemo and radiotherapy i nearly died with fear. But it has all changed from when my mum would of got it 15 years ago. Your treatment plan is tailored to you. You will have everything glash in front of you worrying about your chikdren and family. Its only natural. But as you learn mote about your own diagnosis it won'tseem so bad. You get the strength from somewhere to get you through especially from your children. Ive a little 7 year old. I understand how your feeling. I had my op last october and due my first mammogram tomorrow. Im getting on with life as its too short not too..good luck with your journey and let us know how you are..xxx