Hello

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Hi.  I'm a newbie and this is my 1st post.   A week ago I went to the breast clinic and had ultrasound and mammogram and biopsy for a lump I had felt.  I was told there and then that they had categorised this lump as a 5 and it was highly likely I had breast cancer.  I'm 48.

For weeks beforehand,  I have been having bad stomach problems.  Severe diarrhoea,  pains, cramps and passing blood.  I attended A&E and am awaiting a colonoscopy appointment to further investigate.

I have had pre cancerous cells in my cervix and had to have some treatment over the last few years.  My most recent smear test was about 3 wks ago and I'm waiting on these results too.

For weeks,  I have had severe nausea and since around February (when I caught covid) I've never felt "well".  My fatigue is through the roof and am in bed most nights before 8pm.

This last week has been horrendous,  having been told I have cancer (or at least it is highly likely) I can't believe she told me this.  I never seen it coming and didn't expect to hear these words.  I'm unsure if she should have told me this before the biopsy results were official.  I actually asked her "are you telling me I have cancer?" And "should I tell people I have cancer".  She answered by saying it was up to me who I wanted to tell just now and that she didn't expect to be telling me this news as even she wasn't initially too concerned about the lump but sent me along for the mammogram etc anyway.

I've been on Google almost continuously (stupid, I know) and have now convinced myself that due to my fatigue and nausea,  I have secondary cancer and have worked myself into a frenzy.  A friend of mine who is a nurse is trying to convince me that until the biopsy is back, they can't tell if its cancer or not.  But why would the doctor say it was if she wasn't 100% certain?

I'm going back today.  I'm shitting myself.  Hubby is coming with me.  I'm guessing I will be told for certain today.  What else am I likely to be told today? Will they check the rest of my body?

Any advice would be appreciated.  Sorry for the long post x

  • Hi, 

    I am so sorry you find yourself here. Firstly breathe, you don’t know the facts yet and your mind will jump to the worse case scenario. Second, please please stay off Google, you are torturing yourself with other peoples journey, and most are outdated or opinions not your path. 

    My own diagnosis was similar to yours but I was told to prepare myself, not that it was 100% Cancer, it is and it Triple Negative Breast, my lump was 3.2 cm and grade 3,. Grade is how fast it grows (1-3) and stage is different, they are reluctant to stage a cancer until they do more tests and finally remove it to test. 

    You may be about to go on a roller coaster ride however if you do  there are many good days and you don’t need to think the worst. Believe it or not this beginning stage is the worst part I have experienced so far. I have just finished 6 months of neo-adjuvent Chemotherpy, this is where they do Chemo prior to removing the lump to see if responds to Chemo, you may or may not have Chemo first or even at all, but if you do it IS doable, I have been well looked after, I am 49. Having Chemo before or after removing the lump it is down you many factors, but the end result is usually the same. I had various tests along the way, my Tumor shrank by half after 2 cycles (6 weeks), and I got the results of a final MRI yesterday and was told they can not see the Tumor. I still need a lumpectomy and Radiotherapy but the news if huge in the big scheme of things. I still have hair, but won’t go into that, if your path goes down that route, that’s a question for another day! 

    Good luck today, please take it one day at a time, use all the resources available to you like this forum and stay away from Google xxx

  • Thank you.  I've been today and got my results.  So it is cancer.  It's been caught really quickly thanks to me noticing.  Even 3 doctors have struggled with this lump but its defo there!! I've to get my coil removed urgently and I've to get some further tests and an op within 6 weeks.  I think its "good news" but still doesn't seem good to me.  A long road of unknown ahead but just need to face it and deal with it x

  • Hi Harrigoose

    I am new here.  I wanted to tell you I have the same diagnosis TNBC stage 2 grade 3 tumour size 3 5cm.  I am 59 years old.  I am starting chemo on Monday 26th.  4 lots of AC every 2 weeks for 8 weeks and then 12 weekly lots of AC followed by surgery to remove lump and some nodes followed by radiation if all is good at that stage.  Delighted you got good news on the MRI   Fingers crossed the other tests are clear.  Will be rooting for you   

  • hi , it really is a huge pill to swallow being told you have cancer, but as you probably already realise,  there will be a plan to tackle this head on and you will feel so much better and in control once this starts.  there are many many posts already from newbies who felt exactly the same and then often pop on here to ask questions or advice ...if youbdo the same we will help  you through each step and you won't ever feel alone xx