HI! New DCIS diagnosis 2 days ago

  • 9 replies
  • 478 subscribers
  • 718 views

Hi! Firstly I'd like to say what a reassuring group this is. After my 1st routine mammogram beginning Aug age 50 I was recalled and told there were microcalcifications in my left breast. Following another mammogram and vacuum assisted biopsy I was diagnosed on Tuesday with DCIS intermediate grade (I was told 6cm but I'm thinking this is very uncommon so maybe 6mm?) on my outer left breast area. My husband and I are meeting with the surgeon on Wed after a MDT on Mon to discuss what has been suggested, lumpectomy and then possible radiotherapy.

My Mum had a very aggressive and rare form of breast cancer and died May 2020 age 69 only 8 months after diagnosis, and her Mum from BC age 34. I just can't get my mum's fast decline out of my head and it may seem a knee jerk reaction but I'm thinking about mastectomy as terrified mine will end of being something further down the line. I just feel my head is all over the place and although I'm nomally super positive I'm finding it hard to be in my case despite reassurance about finding this early. Any advice would be appreciated and I send my love to all going through this x

  • Hi KittyKat50. I'm the same age as you and was diagnosed with invasive ductal/lobular carcinoma + DCIS in February. I've had both a lumpectomy and radiotherapy and was told by the consultant that, in cases such as mine, this combo can be as effective as a full mastectomy. I'm also now on tamoxifen for 5 years.

    You will hopefully get much more information on Wednesday. Meanwhile hang in there. The waiting is the worst!

    Take care xxx

  • Hi Kittykat50,

    I’m so sorry for your loss,  it must be overwhelming getting diagnosed so soon after losing your mum to cancer.
    I’m quite new to this journey as well, I was officially diagnosed at the end of June with intermediate DCIS 16mm and Small invasive cancer. I’m 53 so, similar age as well. Had lumpectomy and lymph node biopsy at the beginning of August and waiting for the surgery results and further treatment. One thing that I’ve learned so far is that everyone is different and your diagnosis is unique to you and the differentiation is huge and so is the treatment and prognosis.
    The waiting is the hardest part of this journey, what helps me is knowing that it was found and I have a great team and they have a plan and taking care of me.

    sending love x

  • Just like you am also waiting for results, but feeling very down this week 

  • Hello and welcome.  It seems a long time ago but In May 2015 age 51 I was recalled from my first rountine screening mammogram for 2 areas of calcification (10mm & 5mm).   I was diagnosed with intermediate DCIS in the 10mm area only.  The smaller area was benign.  I had a WLE (lumpectomy) in the July and 15 sessions of radiotherapy in September.  11mm high grade DCIS was final diagnosis after surgery.  No hormone treatment.  Last mammograms November 2021 all clear .  

  • Hi!  I'm sorry to learn of your recent diagnosis. That was a great point about everyone being different, I think the shock just makes you grasp at straws as to who's in similar circumstances. Can I ask how the lumpectomy and recovery was? Also did you have another biopsy between the first when results were given and surgery? It might sound ridiculous but I was told I may need another before surgery and that fills me with dread more than the op! Sending love your way x

  • Ah sending love and positive vibes your way. We can all do this! Here if you need to vent xx

  • Hi, I’m  now around 3 weeks post lumpectomy and lymph node biopsy and the physical recovery is to be honest quite good. It is a bit uncomfortable especially in the armpit area but I have a full arm movement which is reassuring.

     I didn’t have another biopsy but still waiting for the results from the surgery itself which I’ll get next week.

    Nothing sounds ridiculous in the way you feel and you can and should ask anything! 

    The not knowing it tough but once there is a treatment plan and dates it becomes more clear and manageable ..Hugging

  • It is really scary and particularly with your family history. I've been diagnosed with one area of low grade DCIS and two further areas of atypical cells, but the MDT have decided to remove all three areas, so 8cm in total. They said the breast looks 'busy' and dense so it actually feels like a relief. They are doing a LICAP flap reconstruction as removing a quarter of the breast. All a bit daunting, but I feel happier knowing that everything will be removed. I'm just a bit older than you, 55, but described as a 'younger lady' by the consultant, which was quite nice!

    I certainly feel better for knowing the plan, so hope you do too. Best of luck and taking it one step at a time seems to be best. xx

  • I had two vac assisted biopsies for an area of DCIS 5.5cm in total, intermediate and high grade. I had a lumpectomy and mammoplasty on July 21st this year and got the all clear two weeks ago. So relieved that there was no invasive cancer found and that the margins were clear. Just waiting for radiotherapy now, which I am a bit concerned about but it has to be done.