I finally completed radiotherapy 12 days ago and have been on letrozole since mid July. Nothing has prepared me for the depth of despair that I am feeling. I thought that now my treatment has finished I should be feeling better than I do. I had the 6 free sessions of counselling and am sat here thinking what now.
I have a burn under my breast which is showing no sign of getting better. Have seen therapy radiotherapist and been to drs and saw a practice nurse. Nothing they have tried dressing wise seems to be making a difference. My breast itself looks like you could do dot to dot drawing on it. I know they said it will get worse before it gets better. But I dont want to carry on like this. I am waiting for appointment to come through with oncologist as a follow up.
I have awful nightsweats courtesy of letrozole. I have only agreed to take it for 3 months but I dont think I can carry on with it.
Someone please tell me I'm not mad and maybe give me any useful tips.
Thanks
Hi Irishgirl.
Still feeling low today. Was supposed to have gone out for lunch today to cheer me up. But friend let me down with no warning. I am very tired but think thats to do with the heat.
Hi everyone just know how you are feeling I know have secondary breast cancer and it has gone to my bones. I have just had a wide local excision and the margins are clear so good news on that. The first time around I had radiotherapy and luckily didn't have any problems I was also given Anastrozole which didn't suit me at all apart from the hot flushes (had already been through the menopause!) my brain and mood weren't me changed to exmestane and that was worse. Oncologist said the prospect of it returning was about 2% so it was decided I would stop to give me a better quality of life. That was 9 years ago before it reared its ugly head so now I am on chemotherapy as it has gone to my bones and having Letrozole was very scary but so far so good apart from the odd hot flushes and night sweats
I do however get very down that I will probably have to have chemo for the rest of my life unless it stops working. But all the tablets I have to take every day and the four weekly routine to see if bloods are ok I feel like I am on a roundabout and want to get off. I know I should feel very grateful but can't seems to see the end of the tunnel.
Well that's my moan I really hope that each and everyone you takes care and love yourself.
Love Kay
PS If you are unsure of anything then talk to your consultants and nurses until you get an answer you can understand. Mine are not going to be happy on Wednesday!
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ive been on letrozole for about four months and the hot sweats i can just about deal with, i can fully understand the roundabout feeling,i start my 1st chemo on friday and i am obviously worried and confused,i will keep you in my thoughts and hope you have the best outcome tc.
i understand how you feel being let down,i start chemo on friday and thought my sisters would have been in touch,its upsetting when you feel let down,and it certainly makes me feel low,hope your friend makes it up to you and your low mood lessons tc
Oh poppypopcorn I am so sorry that your sisters have not been in touch that must be really hard. I found that the first time round two of my best friends hardly spoke to me but others came forward and were great in their support and are now doing it again. I really hope you find some people like these with they have been my best friends ever since. It could be that your sisters don't know how to cope or what to say maybe a quick conservation with them and see their response if they are not wanting to support you that's their loss.
Just remember I care and so does everyone on this forum
Lots of love and take care
Kay
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