Waiting for diagnosis

Hi

the sentinel node scan …. Is that where they put the dye in prior to the op. I was absolutely dreading it as I had heard it was painful but I can honestly say I hardly felt a thing … it’s a very thin needle and no more painful that a standard blood test 

good luck xx

Hi Cath,

Thinking of you and hoping all went ok today? 

Mads xx

Hi Mads,

The 2nd biopsy showed pre cancerous cells so I now need mastectomy, but I probably won’t need chemo or radiotherapy now but won’t know for definite until 3 weeks after operation.

I’m going to talk to my BC nurse because they’ve offered reconstruction with either implants or my back fat ( plenty of that ) so need to see photos and discuss.

still feeling very positive and can’t wait for 16th September to get rid of it .

How are you ? Did you have the drain taken out ?

cath xxx

Hi Cath,

Sorry to hear that you need a mastectomy, although I know it'll be a blessed relief come September 16th when you can say that it's gone!

They moved my surgery forward so I found the idea a bit daunting to begin with. I had just over a week's notice! But I can honestly say that it was fine and that recovery has been much easier than expected. 

Hopefully your results will mean that you  won't need chemo or radiotherapy. Fingers crossed for that!

If you can have reconstruction at the same time that'd be great. Save you another operation in the future! I decided to delay mine but they're using my belly - plenty of that going spare!! Lol! You should be able to meet your surgeon as well and they'll talk you through it all.

Really glad to hear that you're feeling positive about it all. I bet you just want it done now! 

All ok with me. Had my drain out and can sleep on my side again! Seems to be healing well. I get my results this Thursday. Bricking it a bit because they've told me all along that my lymph nodes are clear...but I guess I'll find out for definite on Thursday. 

Take care, we'll get through this! 

Mads xx 

Hi Mads,

so glad you’re doing ok and will be thinking of you Thursday positive vibes. 

I’m meeting my BC nurse to look at reconstruction on Friday still very confused. Definitely don’t want implant but the back muscle I just don’t know. Always said I wouldn’t be bothered going for reconstruction if I needed a mastectomy someone recommended on here flatfriends.org.uk which I’ve found very informative. Don’t know whether to postpone it because if the gene test comes back positive the other breast will be coming off as well.

I wouldn’t be able to use my stomach fat/muscle because I’ve had 3 c sections .

Don’t know if you are interested but if you writes something on your profile, we can then add as friends and speak privately still on this site but like a text message ?

Good luck tomorrow 

cath xxxx

Hi Cath!

Got my results back and it's all good! I was really terrified beforehand. So now it's a bit of radiotherapy and some medication, not sure when it'll start but so grateful for the NHS! 

So you're seeing your nurse today about your reconstruction. I didn't fancy an implant either, it seemed a lot of hassle because once it's in you have to have further surgeries in the future etc. Didn't like that idea at all! Maybe find out a bit more about the back muscle thing? It's such a personal decision but you don't have to do it straight away unless you want to. I looked at Flat Friends as well, definitely informative.

Postponing wouldn't be a bad idea if you might have to have a second mastectomy, I totally get where you're coming from with that. I decided to postpone but for different reasons. My surgeon told me that as long as I request reconstruction in the next 5 years they'll do it, so I don't feel under pressure. 

To be honest, I'm coping pretty well with being a one boob lady at the moment! They gave me a softie boob that I've named Beryl. I'm not finding it a big deal but that's not to say I'm right! Everyone is different. 

Have a good chat to your breast nurse today. Weigh up the pros and cons. Hope it goes well for you. 

I've updated my profile but I'm not sure how to private message. I'll work it out! Lol! 

Have a good day and we'll get through this! 

Mads xxxx

Hi Mads

Good news , so glad everything went ok yesterday. I can imagine it’s like when we were waiting for the biopsy results, feeling sick not sleeping. But luckily it’s not got into the lymph nodes so very positive. I’ve just requested you has a friend. Top right hand side but if you go onto my profile click + it’s a drop down box.

Take care

Cath x

Hi MadsBee

Congratulations on your good results.  I'm delighted for you.

Best of luck with your radiotherapy when it starts.

Best wishes

Daisy53