Trying to be positive

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Hi, three weeks ago I was told I’ve got breast cancer. I found a lump towards the end of June, had a doctors appointment the following day and was referred to our breast care clinic. I had a mammogram, ultrasound and biopsy done in under an hour and the consultant confirmed my worst fears, that it was cancer. His initial thoughts were that surgery then radiotherapy would be the best option. When I went back the following week for the biopsy results all that had changed, I’ve got a 25mm grade 3 tumour and will need chemo, surgery then some chemo after that. Due to our hospital being two oncologists down, my meeting with my oncologist isn’t until 19th August, with chemo planned to start on 24th. This is the worst part, waiting to find out what the plan is and I’m struggling to stay positive, I’m my own worst enemy and find myself drawn to Dr Google, not a good idea I know as now I’m fixated on getting neutropenic sepsis!

  • Hi Jo! So sorry you’re here! But we’ve all been exactly where you are now! Don’t Google for goodness sake, there are so many variations of BC all very different. I had a 36mm tumour grade 2 but until I’d had my mastectomy they couldn’t tell me much more, for example, hormone receptive etc. As it turned out I did need chemo and radiotherapy after my mastectomy. Maybe you need chemo prior to surgery if they’re planning on a lumpectomy rather than a mastectomy, so that they can shrink the tumour which will mean a better cosmetic outcome following surgery. My surgeon tried to opt for a lumpectomy, but due to its position (close to my pectoral muscle), it wasn’t an option. I’m sure all will work out well. Apart from the worrying, the wait time isn’t anything to concern yourself with, I had my lump for 4 years, certainly 2 when it was malignant, before I had any treatment. Not a lot should change in a few weeks! Try stay positive, as hard as it is, you’re getting the best care now! xxx

  • Hi Mazz

    It is HER2 positive and my surgeon is hoping for breast conservation rather than a mastectomy. I know I’ll feel better mentally once I’ve met with oncologist, it’s going to be a very long two weeks!!

  • It is going to be along two weeks! But try to make them count! I did my best to stay positive every day I felt well and got out and did things with my dog and family! This’ll be a distant memory soon, don’t live like your life’s over, it’s not! We’re all headed the same way one day, maybe when we’re 90 odd years old, who knows!  We should enjoy every single day until then….  xxx

  • Hi JoBangles

    Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer. I was diagnosed with breast cancer in September 2020 and after after having chemo, surgery, radiotherapy and some more chemo I am now cancer free.  Waiting to find out your treatment path is hard I know but when you know what treatment your oncologist puts you on things should start to feel better for you.  In the meantime as Mazz says keep yourself busy. If you continue to really struggle why not visit your local Maggie's centre and chat to one of the volunteers in there or ring the Macmillan helpline on 0808 808 00 00 to talk to someone about how you are feeling. 

    Wishing you the best of luck with your oncologist's meeting and your treatment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi  Hope you are doing ok and I agree the waiting is the worst, once you have your plan you feel more in control.

    I was diagnosed last June (30th) with a grade 3, HER2+ tumour that was over 6cms and there were another couple smaller and enlarged lymph nodes. I had 6 rounds of EC chemo then weekly paclitaxal with 3 weekly perjeta and herceptin. Surgery on the 29th Nov, mastectomy and radiotherapy started around 5th January. I am still having herceptin and perjecta, 3 to go and that’s it. I had very good results, no cancer found during MRI post chemo and pathology confirmed this. 
    We are all here for you so please never feel alone, I found the forum to be so helpful as there was always someone who could relate to what you were going through. 
    My advice for what it’s worth is, stay away from Google, look after yourself, take each day as it comes and remember it’s your cancer so you feel how you feel, there are no rules or norms that you should feel you need to fall into. 
    take care xx