Newby recently diagnosed high and low grade DCIS

If you click on my name you'll see I had two areas in 2015.  I had lumpectomy followed by radiotherapy 

Thanks Carol. Sounds like you're having a good next journey. 

Agreed today that he'll do a WLE in the next few weeks, followed by radiotherapy.

It's then fingers crossed for good margins and no invasive cells... 

It's also ER positive so next discussion is around HRT (stopping it) and tamoxifen (in the future), so any signposts to good articles / links etc so I can do my research would be greatfully received. 

Glad you have a plan.  Fingers crossed for no invasive cells and clear margins.  Mine wasn't hormone receptive and I never took HRT as I got through it ok. So once I had radiotherapy my treatment ended.  Lots of ladies on 5/10 year hormone therapy so hopefully someone will come along and give you more information xx

Hi Buzzz, I've got a similar diagnosis (DCIS, high, intermediate and low grade) but a large area so mastectomy (hopefully DIEP) planned. 

I stopped my HRT as I panicked when I found out I was ER pos.  Been ok so far (I'd gained weight since being on the HRT and I've found my appetite has reduced a bit since stopping it). Sweating a lot but think my pre-op exercise plan (started running again) is helping my sleep and mood so far.  Not looking forward to tamoxifen, but been told that won't start until 6 weeks after the surgery (then 5 years, if I can tolerate it).  

Glad your lumpectomy is planned soon, how are you feeling about it?  I'm finding the waiting difficult at the moment (still waiting for my DIEP appointment).  

Hi Arturoartura I'm ok.... It all 'landed' Thursday and I felt anxious and tearful, all as people have described on here, so I just left it come.  

I'm fortunate as my oncologist is fantastic, he hasn't told me what I need to have done, but has talked through options, pros/cons and has been patient as I've talked through my thinking. 

I'm having a WLE to remove both areas and hopefully get a clear margin, where I'll then start radiotherapy. 

I was also on HRT, so I could take testosterone (joint and muscle pain), and I've also stopped as mine is ER. Whilst I know there are different opinions on the risks, it's the right thing for me mentally at the mo - so I'm on the look out for natural substitutes! 

Good luck with your DIEP - we have talked about this as if I can't get clear margins then a mastectomy could also be my next steps - so it would be good to hear how you get on. 

The anxiety comes and goes at random, doesn't it @Buzzz? Today I was having a massive decluttering session to distract myself.  Glad you've got a good oncologist who has helped you to cover all the pros/cons.

I've found information from Liz O'Riordan and Annice Mukherjee (both doctors who have also had breast cancer) useful to help go through all the evidence and get my head around it all. Read something that said that doing regular exercise can work as well as HRT (hence new running pre-op regime.. ) and hoping to try and fit that in after I recover from surgery.  Joints aching today though, don't think they're used to all this activity!

Arturoartura yes I follow both of them. There's quite an interesting debate going on at the mo in relation to HRT and BC, isn't there?! I have Annices book too, which is really helpful. 

The joints thing will be a nightmare for me, it was before HRT, even with being fairly fit - I basically injured really easily. I am determined to get the better of it though