New with Invasive Lobular lump

Hi Sparkles133 and welcome to the club that no one wants to join but is full of amazing and supportive members. I was diagnosed a few weeks back with grade 3 invasive ductal carcinoma that has spread to my lymph nodes. Still waiting to speak to surgeons about whether it has gone anywhere else but I am starting chemo next week to try shrink it and stop it spreading further before surgery. 

I was the same as you when I was first diagnosed. I think you hear the diagnosis and almost shut down a little so don't thinknof any questions to ask at the time. Have you been given the number for breast care nursing team? They have been a massive help for me as they can go through your records and explain things in less medical terms etc and take the time to answer your questions.  I found it useful to take someone with me to my appointments too and to make a list of questions to take with me. There is a list of questions on this site somewhere that helped me think of things to ask. I'll try to find a link in a minute for you (my 2 year old just woke up and is running wild atm so need to sort that first haha!) 

Take each step as it comes, one foot in front of the other and just know that there is always someone here if you need to talk x

www.macmillan.org.uk/.../questions-to-ask-your-healthcare-team

Hello Sam2312, the biggest thank you, you have made my day with my first reply and you  are so right on the club, you wish your name wasn’t on the list. 

i have to say I have hardly shared with anyone and the reactions I have had, I can tell they don’t know what to say. I totally understand because I feel like that too. i am sure that will change in time given the journey……I know surgery will be happening. 

You have nailed it as I heard the word “cancer” and I think I stopped listening…

I am currently visiting 2 hospitals and have been given 2 nurse details - think I need to find out which one I am meant to contact.

That link is great, because everything flew out my head at the time of being told. I need to write them down or I know I will forget…..

Hey thank you for sharing your diagnosis too. I had read up on yours, as before I got my results, I started googling…..did stop as could’ve fallen down a rabbit hole

I am sorry to hear you are in the club too.  I hope the surgeons share with you quickly the best pathway. I have everything crossed for you and hope your chemo goes well (I need to read up on it, as totally clueless)  You are my first person I have had a reply and even though I don’t know you, there is a special little bond already, hard to explain but am here for you too.

The nurse said I am on a pathway, I felt like saying it feels like a rollercoaster ride….

I have a 12 year old daughter, who can be just as wild, so you have made me laugh. 

Am sending you super big virtual hugs.  Please keep in touch and here for anything. 

I know this sounds silly but I have decided this is my new motto “life gives you lemons, make lemonade”

The biggest thank you again

Sparkles133

Glad I was able to make you smile. I like your motto...its just missing some vodka lol! I have taken the stance of trying to find the silver linings and the little things we can laugh about in order to get through things. The alternative would be falling down in a crying heap and that isn't going to work for me. Silly little things like the fact I now have a beautiful blue purple and silver ombre wig that would have cost a fortune to maintain if it was my own hair...chemo will make my hair fall out including my leg hair - no more shaving! We've even named my tumour (I say we, technically my hubby did but it was too funny I decided it had to stay) "Tina Tumour - because she's simply the breast"!

We all have our unique ways to deal with this, let be honest, completely sh!tty situation. You will find yours too xx

I think it was fate we met on here because I have just read your profile and I hate needles/blood, I love vodka. I once wore a purple wig for a hen do, but yours sounds outta this world.  I have just updated my profile too.

I am with you too on laughing at the little things,. The name of your tumour - nearly fell off my seat laughing.  That is epic. I think it’s inspired. I need to name mine….going to wait to discover if I have 2.

You are so right, I would like to get off this rollercoaster ride as have no idea where it’s taking me…..I will be using humour to get through this. 

Love your humour xxx

Hi Sparkles133

A warm welcome to the forum and sorry to hear that you have been diagnosed with breast cancer.

Best of luck with your treatment when it starts.

Best wishes

Daisy53

Dear Sparkles, it’s rubbish to be a member of this club in some respects, but it is also the place where people really do understand what you are going through! 
l was diagnosed with lobular BC in 2005; it is notorious for being sneaky and popping up in several sites. On the positive side, it tends to be slow growing. I opted for mastectomy even though the surgeon offered lumpectomy but things have moved on in treatment now! 
Good luck with your treatment and be kind to yourself. 

Hi Daisy53

Before I decided to join this forum. I started reading a few messages to see if I thought it would help.  I saw your user name on quite a few replies….I have to say I think that’s awesome, that you make the time to reply.  

Really appreciate the warm welcome.

Thank you so much.

Sparkle

Hello Meiard 

Thank you so much for taking the time to reply and sharing your experience. It so helps as I don’t know anyone who has this apart from this forum.

I think you have nailed a few things:

Being a member - sounds like we have a choice, ha ha, I wish

This forum, think there is so much info here, only dipped my toe in so far 

Yes my consultant mentioned “sneaky” too and who knew I had a 2nd lump (hidden) behind the 1st….so have to wait and see 

Actually I asked about a mastectomy and was advised by the consultant to hang fire whilst options are reviewed….by them not me.  I think if my 2nd lump is cancer too, it will be the same as you. 

Bless appreciate your kindness and if I can help in any way too. One thing I send is a huge virtual hug.  Wishing you the very best with your treatment too.  

Good luck too xxx