TNBC stage 3 + lymph nodes. Doctors didn't tell me about cancer in lymph node in my chest

I was told I had a lymph node in my chest at the time of I time of  diagnosis they did chemo( which I didn’t have a response to) then I had a mastectomy and full lymph clearance then radiotherapy to breast area, lymph node bed in arm sub clavian fossa and my node in my chest. I was told because it is so focused a treatment it is normally successful 

Are you now clear? Was the radiotherapy to your chest successful? I hope you are feeling well now.

I’m really sorry to read this. I found out from the discharge notes (sent out about three months after all primary treatment completed) that I had a mixed tumour. (Invasive ductal and lobular). I had no idea, and the world stopped for a few minutes. I was always told it was invasive ductal, and right from the start, my treatment plan was chemo, surgery, radio, plus Anastrazole  for ten years right, regardless.  However, I know that lobular doesn’t always show up on scans, and is sometimes only detected by pathology after surgery, and that even if it found earlier, it is treated exactly the same as invasive ductal.
Yet I didn’t get told about a mixed tumour at the post surgery meeting either, although saying that, my surgeon was on holiday and I was seen by someone else, who possibly thought that I already knew. My radiology consultant was extremely thorough, and offered me radiotherapy of the sternum as well as whole chest wall (I had mastectomy), axillary area, collarbone. She said that the sternum area was being offered after 15 years trial data from the USA. I signed the consent form, as you do, but wonder now if she knew about the lobular, and assumed I did too. I am very grateful to her, as well as my surgeon and oncologist.
Your situation is different to mine though. I think I would ask for a meeting. Did you have follow up / monitoring scans whilst on chemo? I did, but had surgery after chemo. Could you ask for a scan of that area now for reassurance? I am very sorry that you have had this news, but I think further information and clarification is key. Xx

I've seen so many different doctors and they all told me the PET-CT scan was clear. I know they were specifically looking at shadows and cysts on my liver which was clear but they never mentioned my chest lymph node. I saw the scan last week and it lit up like a huge green beacon so they could not possibly have missed it. I am worried because I am so breathless now, just walking slowly up the stairs, and the lymph node is close to my lung. I haven't had any further scans but the first radiation meeting in 2 weeks time does involve a scan so hopefully this will show that it's shrunk or even gone. Thanks for your reply.

Hi, yes, you will have a CT scan to the area that is being zapped, I guess that you could ask the radiologist. That’s reassuring news from Dc6. X

1. Hi I am no evidence of disease now , I feel good almost back to my old self. 

Hi, did you tell her that this had not been mentioned to you previously and you had also been told you were cancer free?  I had mastectomy and lymph node clearance, then chemo and radio.  My radio was to prevent a local recurrence as even though cancer was removed they cant guarantee any cells hadn't strayed x

No the feeling of not being told stuff. Thankfully the hospital I go to send a copy to myself of what letter they have sent to the GP. There were loads of items on it and no they hadn’t been discussed with me. I went up the wall with worry, working out what the terminology meant.

It might be post lockdowns and staff shortages that everything is being rushed