so I have just had my first chemo just over a week ago
and it’s been a hard emotional rollercoaster of side effects , emotions and realisation.
i guess the biggest shock was I felt fine before I had chemo ,working and socialising/doing things
but now I feel unwell and unable to work
does anyone else remember feeling like this after their first chemo ?
many tips would be much appreciated
Yes I know exactly how you feel had my first session Wednesday and remember feeling really well the day before fast forward and I feel absolutely dreadful, like you I was out socialising and once I had come to terms with it was feeling quite positive. Thought I might feel rough for a couple of days but there’s no pattern to it, and I have to go weekly. Just hope it improves. The only consolation is it’s coming into Summer would hate to go through this in the Winter. Take Care Sarah x
yes I think we have an idea but to be honest I think I was in denial and really thought I would feel ok . when I asked the doctors they said yes you can work and said you could be able to sail through just wait and see.so I guess I was so shocked because I wasn’t prepared but I know everyone reacts differently.
you are so right we all need to find our way and get through it best we can
Im a hairstylist and work in a busy salon so all though I feel much better today on day 9 I still feel weak and don’t feel I can stand all day , be busy and give the best service to my clients .
it felt like I was failing at first as I wanted to work but I now realise I’m not and I would be failing pushing myself to .
heres to looking after ourselves and putting ourselves and our health first
Thank you x
my first EC absolutely floored me…the second wasn’t so bad, because I knew what was coming and I knew the bad but would be over by day 7. Like you, I was told ‘many women sa through it’/ ‘work through it’. I am glad my company aren’t making me as I honestly don’t know how people work that first week…I could barely get out of bed. I do think you’ll feel better on your second round. I am dreading round 3 this week but then will be half way through. 5 more seems such a lot on the first one and it’s all so unexpected.
best of luck with it all. We’ll be finished wit the worst of it for summer. Xx
Thanks Tor, I think I’d convinced myself that I could somehow beat the side effects by being positive and determined. Instead, the drugs have well and truly beaten me! But I did have a lymph node ultrasound after 3 cycles of EC, which showed a good response, so as you say, they are working
I am just coming to the end of my first EC and to be completely honest I have been ok, I was expecting it to be awful, after the drunken feeling a the beginning on the day, I was ok, I am trying to do as much exercise as possible, Its more the low feeling that has floored me, I feel I am just getting more positive now, my hair has started to fall out even though I used the cold cap. Probably lost about 30%, not sure how much more i will use, I have my wig waiting!
Does anyone else have any ultrasounds scheduled? Or how has your oncologist advised you they will be monitoring your chemo?
I choose not to cold cap due to the next weekly chemo I couldn't face bring at the hospital for an extra 3 hours.
Yesterday I had to shave my head and I would like to say it was liberating but I found it really hard.
But my hair was falling more and more after 2nd chemo I could bare it and didn't want my two boys to get scared.
I have a wig lady coming tomorrow as I think that's best for Me for going out and about.
It appears all outside effects are the same so must being doing the job.
I have just changed from 3 x 3 weekly EC to weekly Pax/Carb. My oncologist scheduled in an ultrasound last week before I started my weekly treatment. It was promising news as the tumour had shrunk from 11mm to 6/7mm. Fingers crossed the weekly sessions will reduce it even more. Unfortunately I tested positive for covid yesterday, so have to delay this weeks treatment.
I did cold cap for the EC, but like you the thought of an extra 3 hours each week put me off so will just see what happens. I lost approx 50% of my hair using the cold cap, and have my wig ready when needed.
Good Luck x