What questions should I ask?

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Hi

I have just had a 17mm suspicious lump confirmed and aim waiting for the results of the biopsy.

What questions should I ask when I get the results?

There is soooooo much information out there, it can be tricky to distill it down!

  • Hi 
    these results could still come back benign. So my advice don’t Google anything until you know. Then only look on reputable sites as the internet is dangerous. 
    the information you will be given if any will be enough to then speak your bcn if one is needed. 
    I have just been diagnosed with 12mm and 5mm with IDC and I’m awaiting my op on 3 May and won’t find out anything else until after the op. 
    Its a horrible waiting game for answers. But hold onto this could be nothing to worry about. Keep positive x 

  • The googling ship has long since sailed! The doctor said ig is definitely not benign- just waiting for the results to determine exactly what is going on.  Grimacing

  • if the pathology report says the lump is benign:

    1.   What exactly is this benign lump?

    2.   Is it expected to disappear by itself?

    3.   If they say Yes to #2: if it has not disappeared by that time, who do I contact?

    4.   If they say No to #2: does it need to be removed surgically? If not, what are my options?

    5.   If they say Yes to #4: if I leave it, what are the chances of it turning malignant? Any other risks?

    if the pathology report says the lump is cancer:

    1.  What type of cancer is it? (some are hormone-sensitive, some aren't, they should tell you exactly.)

    2.  What grade is the cancer?

    3.  Do you have enough information to tell me what stage the cancer is at? 

    4.  If they say Yes to #3: what stage is the cancer?

    5.  If they say No to #3: what other investigations do we now need to do to determine that?

    6.  What treatment plan are you proposing?

    7.  If the first thing on the treatment plan is surgery, I would ask who would be performing the surgery, where surgery would take place, and when do I get to meet the surgeon (this is so you can ask the surgeon several other things prior to surgery.)

    8.  Also if the first thing on the treatment plan is surgery, I would ask how long after surgery would you be receiving any possible further treatment and whether any of that would depend on the pathology report following surgery.

    9.  If the first thing on the proposed treatment plan is chemo, I would ask exactly what type of chemo, where would it be given, at what intervals, how long a chemo session is, what the risks are, and what the possible side effects are.

    10. What are the contact details for my nurse (phone, email) and what days of the week does she work?

    11. Last question always: "anything else I need to know?"

    That's off the top of my head. If I forgot anything, I will post again later.

  • Ah I’m sorry to hear that. 
    yes I was told also before biopsy it was cancer. Confirmed with biopsy. 
    I asked what type it was grade and stage i was offered either lumpectomy or mastectomy. I opted lumpectomy. If the findings after op change then that could mean more surgery  they are also taking two nodes out in op they said  

    I also asked if it was her2 - or +

    everything else regards treatment will be determined at results from pathology. Fingers crossed After op 

    I’m still very frightened of the outcome but try to stay as positive as I can. As I am a single parent with a young son. Whom I haven’t told it’s a lonely journey for me. 

    X

  • Honestly you are such an inspiration on here. You always show great advice. Would love you to be in my corner fighting this. You are so strong. What an advocate x 

  • FormerMember
    FormerMember in reply to nikknok

    It is such an unexpected shock isn’t it, loads of different emotions and feelings to process, I totally agree with Army as there are different types of tumours that are fed differently. 
    so until you know what type of cancer it is for you, it really is a good idea to keep away from the internet. 
    trust your team, write things down for yourself as they pop in to your head, and your partners queries as you may forget things due to the stress of situation we are in. 
    I had my tumours removed last week, it’s is such a relief to just get rid of something that just doesn’t belong in the body.
    am now waiting for the next set of results re risk of reoccurrence which is a new ish test apparently, so depending on what the risk is will dictate  the next course of action… ie high risk chemo or low risk Radiotherapy. 
    in the short time I have had my diagnosis, the thing I have learnt is nothing is feels fast. And the time it takes is the time it takes. 
    But I feels totally thankful that it was accidentally found and that the MDT are brilliant. 
    The last thing that I will add is that it is far easier to tell frightened friends and relatives what is going on from a place of fact rather then assumption. My tumour was 31/2 times bigger than originally thought and there was a second tumour nearby or attached. This did not change my diagnosis or grade or type of tumour or type of surgery required.
    One step at a time, use the support around you, if in doubt ask your team. 
    all the best with your situation. 

  • This is so helpful gteycats- thank you

  • Thanks army. I do now feel googled out! In my mind I now am clear what happens at the next meeting,  so that is reassuring.  Everything moves so fast which is great- gotta love the NHS!