Newbie here, going flat

FormerMember
FormerMember
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Hi everyone. 
Just joined the group. 
I was diagnosed with Grade 3 IDC in Jan 2015 , no nodes involved and had 3 lumpectomies and radiotherapy, no chemo. In 2017 I was diagnosed with Paget’s Disease in the same breast, which is a cancer of the nipple. I then had a mx without recon. I’ve been left with one large breast, I’m a H Cup, and have to wear a large prosthetic, which is uncomfortable and has a tendency to fall out my bra whenever I lean over (often in the supermarket!) The imbalance is also causing me pain in my neck and shoulder and my surgeon had agreed that I should have the remaining breast removed, for symmetry and risk reduction. BC runs all through my family, although I am negative for BRCA. I am quite happy to be flat now and don’t want recon and have no problem with body image. I’m nearly 70 and have been married for 45 years. I would probably feel differently if I was younger I think. Had anyone else been down this route? Had a little bit of a wobble today which surprised me. 

  • Hi Frankie. Different route here, same outcome. I had a mastectomy nearly five months ago, told the surgeon not to bother with reconstruction, and I was glad I told her that when a few months later it was decided the other breast needed to go too. The same surgeon did the other side while "revisiting" the original, and now I am recovering from that. I have no interest in reconstruction and so far have not been using the prostheses. Like you, I feel comfortable in my own skin.

    A bit of a wobble is allowed Slight smile I hope you are feeling ok now.

  • FormerMember
    FormerMember in reply to GreyCats

    Thank you. I’m also having some revisions to the original side as I have quite a big flap of skin left. Apparently should be a day job but my record with anaesthetics is not great. This time surgeon says he’ll be using a nerve block for pain relief rather than the stronger stuff which I react badly to. Not sure how that will work. 

  • I can relate to that. My own responses to drugs are not always the expected ones. No issues with anaesthesia, but the majority of pain relief drugs either have no effect, or make things worse. 

    The nerve block sounds good in terms of stopping the pain. They will very likely monitor you very closely considering the background history. Do you have a date for the surgery?

  • Hi Frankie, last November I had a bi-lateral mastectomy after a diagnosis of lobular one side and ductal the other along with left side node clearance. My surgeon assumed I would want reconstruction (I'm 52) but said not until after chemo and radiotherapy. She talked about a DIEP and I've looked at what that entails and decided not for me. I also had large breasts, HH cup and I have to say I feel kind of liberated. I always had back aches and dents in my shoulders from bra straps. I've tried knitted knockers and the hospital prosthesis and don't really like either. I have had cellulitis in the wound area so when that is completely gone I might get a proper fitted prosthesis for when I want to wear fitted clothes. In terms of the operation, when I met the anaesthetist just before the op he recommended I have a nerve block instead of 'the old fashioned way' whatever that was and was concerned about managing my pain afterwards. When I cam round I was numb across the chest and over surgery site with no pain. It lasted about 2 weeks and slowly faded away. 

    Hope this helps.