Hi Everyone,
I'm 35 and I have two young daughters who are 3yrs and 1yr old. I was diagnosed with breast cancer last week.
I don't know masses of detail yet but I'm oestrogen and progesterone positive and HER+ apparently. Not sure what all these things really mean still. As well as a tumour, I have high grade DCIS in a large area of the breast. Lymph nodes are clear (they think).
Finding the waiting and not knowing very hard. I work full time, moving house, starting a new job so everything feels quite overwhelming and not sure what to do for the best.
Thanks so much to everyone for sharing details of their treatment - gives me some ideas what to expect. So far they've said Chemo, then surgery then radiotherapy but I'm really not keen for the Chemo :( Want to have surgery and just get stuff out of me!!
Hope everyone is doing the best they can be.
Jo xx
Hi JoF
Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer. I found the waiting for results was the hardest part of the journey. It's understandable that you want to have the cancer out of you as soon as possible. Hopefully the chemo will shrink the tumour.
Wishing you the best of luck with your treatment.
Best wishes
Daisy53 xx
Hey Jo, I’m sorry to hear your news! Very heartbreaking to hear. I’m 43 & also just found out last week I have breast cancer! Grade 2-3 IDC , Her2 positive at the moment until I have my mri results. We are also in the middle of moving , I haven’t had my treatment plan yet , had MRI last Friday & now I’m waiting to see my oncologist. The waiting time is tortuous but I’m trying to focus on packing when I can to distract me although it’s not working to well at the moment.
Just thought I’d pop onto your post & send virtual hugs.
Honey xx
Hi JoF,
I can understand why you just want surgery to get the cancer out but usually more treatment is required. Being triple positive (as you are) means there are a lot more treatment options available to you.
I had a similar treatment plan to you (chemo, surgery, radiation). Having chemo first shrinks the tumour and could determine if you have a lumpectomy or mastectomy. Obviously I’m relating this to my particular case so this might not be relevant to you regarding type of surgery.
Chemo sounds, and is, daunting but it is doable. You’ll get lots of advice on here for symptom management etc. Try and get as much help as you can from family and friends. I also got help from Macmillan regarding money advice and phone support from my great phone buddy.
Lots of things are happening for you but now is the time to concentrate on you and your health. Once you come through this, which you will, you’ll have the rest of your life to live.
Bluebell
Hi. I had lumpectomy/sentinel node removal on 20th Jan. Diagnosis was 19mm, Grade 2, ER 8 and HER2 positive. Now having chemo FECT x 6, 2nd cycle next Tuesday. Was given Anastrazole rablets for a month, prior to op, to prevrnt growth/hopefully shrink as oestrogen receptive. Invasuve, Ductal. Had clear margins and not in lymph nodes. Doing okay on chemo ATM and no hair loss yet (Day 16). No horrid side effects, just achy legs, headache for few days, indigestion type chest pain, which Gaviscon sorted! All the best. Jo x I do have my wig ready and hair cut short now, as expecting the hair loss to happen soon.
Hi Gander, my 2nd chemo is this coming Friday. Like you I have my wig at the ready. On Monday this week I started to see more hair coming out, so my hairdresser trimmed the back. She believes currently that my hair is breaking off rather than the roots coming out. Good news is that my oncologist confirmed by feeling, that my tumour has shrunk even after one chemo cycle. Fingers crossed for all of us x
My scalp felt tender for a couple of days too, prior to hair falling out. Most of mine is behind the ears. Are you trying the cold cap? I am.
my hair dresser advised not to wear the wig until last resort, as it will cause friction with what hair you have
Has your hairdresser given you any advice?
Sandra
x
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