Hi, I'm new to the group

Hi Happyvibes

I got switched to exemestane from Letrozole just before Christmas due to issues with knuckle joints and hands. Onc said it is not better for some folk, but for some it is.

It takes 8weeks for the letrozole to wash out. It has a similar effect in suppressing oestrogen and works in a different way. My hands have gradually got much better and almost back to normal now. Really, pleased. It could be worth a try for you. My onc was pretty cool about this. I hadn't asked to change, I just commented on the fingers/hands. It was her suggestion.

Good luck

WallyDug

Thank you for this advice. I have a Tel app with my oncologist in April and will discuss options with her. My GP wasn't keen to switch brands and said she would write to the oncologist. That was 3 weeks ago and I have heard nothing yet.

Hello. I can empathise with you. I finished treatment late September. Struggling with swollen boob and armpit although the cording is easing following radiotherapy. Have found this much harder than the surgery. I'm on tamoxifen but can understand that everyone reacts differently to the drugs. I feel washed out, my sleep is still poor and my motivation and enthusiasm for work has disappeared. All i can suggest is to keep going and take one day at a time.

Thanks for your reply, are you back at work too?

I feel as though the old me is still missing and because I look well and appear to be 'over the treatment ' people don't understand how much of a struggle it is to get on with life. I'm incredibly grateful for the treatment I have received but the ongoing support re side effects could be better.

I constantly tell myself that I must try harder and just get on with things. I think I would feel better if my sleep quality could be improved, the leg pain is always there.

I'm 62 and would love to give up working but can't afford it until I get the state pension at 66.

I only really had 5 days off sick following my surgery then I was on holiday for a week. Work were good in that I worked from home but new role and its been too quiet for my liking. I just took time out of the day when I had my 3 weeks of radiotherapy. I just don't seem to have any enthusiasm. It can be high pressure but I just don't have the support of others to help me doing the work properly (I'm a bid manager for a construction firm). I'm not 50 yet but planning to move in with partner this year and will quit my job as not enjoying it. Not sure if I will go back into same role. I can't touch my odd pension bits till 57 and not yet sure about my pension i had with one work place think its about the same. People have no idea about the struggle and constant aches and pains unless they have been through it themselves.