New to Group, New to Breast Cancer

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Hi, just wanted to introduce myself.  I am newly diagnosed with Breast Cancer, found during a routine mammogram last month as I was 50 this year.  I have a grade 3, invasive carcinoma which is ER positive and HER2 positive, I also have surrounding high grade DCIS and will be having Chemotherapy starting on 3rd Jan (3 cycles of EC and then 12 cycles of Paclitaxel, Trastuzumab and Pertuzumab) followed by a mastectomy with hormone treatment somewhere in there too. Luckily it is still in a relatively early stage.  Reading others experiences and even writing all this down for the first time now is really helping me come to terms with what is happening as my emotions are all over the place.

  • Hello Tissy33, welcome to the forum no one wants to be a member of. Slight smile

    I hope that from now on everything runs smoothly for you, and this time next year you are cancer-free.

  • Hello Tissy

    Sorry to be meeting you on here. Welcome to the forum. You will find it a great source of information and support. I have had the same type of BC as you and am 13months further down the line on a treatment plan similar to your own, except that I had docetaxel, not paclitaxel. I am still on three weekly Traz and Pertuz maintenance doses until March. Also take Letrozole daily and get Zometa infusions 6monthly. These are all to help stop it recurring. I got a complete clearance of cancer from nodes and tumour from the chemo + T&P alone. None left in the tissues removed at surgery. I tell you because i found it helped me to hear of Good news stories.

    I completely understand about your head being in a whirl. We have all felt the same about this invader that we didn't sign up for. Use the forum to the max to ask questions and to vent when you need to. Better out than in. 

    I am feeling really good now and you too will beat your gremlin. 

    Good luck and I hope that you can still have some joys a Christmas. Take it one day at a time and you will be out the other end of treatment before you know it.

    Big virtual hugs

    WallyDug

  • Thank you.  Although no one wanted to have to join, I am sure we are all glad the forum is here. 

  • Thank you for sharing and caring! It really does help. Hugging

  • Hi Tiissy 

    same diagnosis as you , same treatment Her2 positive 

    just had my first chemotherapy- am now on day 10 post chemo, same treatment plan so far 

    am being treated at NNUH , oncologist here seems a lovely caring woman , we have a Big C here , unfortunately now closed due to covid .

    ask any questions, there are ladies at various places down the line , so can give lots of advice and their experiences so far 

    good luck x 

    deb 

  • Hi Wally dug 

    I’m loving your positive story so far , gives us all hope x

    Deb 

  • Hi Deb, thanks so much for replying.  I am being treated at Clatterbridge. There is a Maggies on site but I haven’t been in there yet. Hopefully it will stay open but who knows with the current Covid situation.  Hope the Chemo has not been too bad for you so far.  I can’t speak highly enough of the care I have received so far at the breast clinic and the cancer centre. The professional yet compassionate manner shown by all the staff has just been what I needed and makes such a difference doesn’t it?  Good luck to you too x

  • Hi again 

    I’ve heard Maggies are very good 

    unfortunately we don’t have one here in Norwich/ Norfolk area 

    I’m originally from Manchester , so am a bit familiar  with Lancashire/ Cheshire having lived in both . All my family in Manchester area, and my daughter in Crewe. My son is a student in Nottingham, but luckily he is home with me for the holidays . At 21 he’s able to nip out and get me things etc . 

    yes seems like a long road ahead .

    my next chemotherapy and herceptin injection is 31sr December . Do you have a date yet for yours? Or perhaps you are waiting for a cancellation ( that’s what I got on the 10th Dec)

    I only told a couple of people when it was happening as just wanted to get thru the first 

    obviously I told my employers , 3 friends and my elderly sister in Manchester , oh and my kids 

    x

  • Sorry I just saw your date for chemo x 

  • Hi Wallydug

    Sharing your journey does give us ladies here so much hope...thank you!! 

    Tissy33

    Sorry you found yourself here. We have all been at this point like you now. Get told diagnosis and sent off home to go make sense of it all with little to no support, but you're in the right place. 

    Give yourself time to digest and ride out the emotions. You will feel better once treatment is underway, waiting is just horrible. I am waiting for chemo post mastectomy. Likely to be on Thp (Pacli x 12 like you) 

    Be kind to yourself! 

    C x