Just diagnosed

FormerMember
FormerMember
  • 11 replies
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Hi everyone. Diagnosed with DCIS yesterday and my head's all over the place.

MDT meeting today and appointment next Tuesday to discuss treatment plan etc.

Any words of wisdom or advice you can offer would be much appreciated right now. xx

  • Sorry to hear this Lindyloos. I found the initial diagnosis one of the toughest times but once I had a plan I felt it was easier,  more controllable. My main advice right now is not to Google anything, but listen to your medical team.  And take any help and support offered to you. For me, keeping things as normal as possible really helped, as did being open and talking to others.   It's tough, but many many ladies go through this and there is a huge support network on here. best of luck xx

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  • So sorry to hear your news. It's hard to realise that this is happening to you, especially when you don't even feel a lump or feel ill.

    My advice is to take it one day at a time. I'm sure you will feel more in control once you know your treatment plan.

    Please remember you are not going through this alone  you have this group to ask questions and get tips as we are all at different stages in our journey. 

    Wishing you all the best and please try to stay positive

    BoobyJ

  • Nothing prepares you for a cancer diagnosis.  Do you know extent of DCIS,  In 2015 i was diagnosed with 10mm of intermediate grade DCIS and plan was surgery (WLE/Lumpectomy) followed my radiotherapy & possibly hormone therapy.  I had day surgery & surgery pathology showed 11mm high grade but not hormone receptive,  So after the day surgery I had 15 radiotherapy and then annual check ups.  

  • FormerMember
    FormerMember in reply to Grogg

    I don't know very much at all, other than it's 15mm. They just said they'd tell me more at my appointment next week after the MDT meeting. 

  • I was lucky that my surgeon gave me diagnosis a week after the biopsies at the one stop clinic.  I'm a G cup so she initially asked me to think about have a reduction on the other side but after MDT meeting it was decided it wasn't needed.  All you see is little dent in my breast.  

    Were you picked up via routine screening?  I was, my first one.  I've just had year 6 enhanced mammogram and all clear.  

  • FormerMember
    FormerMember in reply to Grogg

    Yes, picked up via routine screening. 

  • Hi Lindyloos, I’m in exactly the same position and know what you mean about being all over the place. I didn’t experience any symptoms but was told I have 11mm Grade 1 after routine mammogram and biopsy. I only found out last Friday and have an appointment this Friday with surgeon to discuss treatment plan. I do believe these early days are the worst as it’s all so new and hits you like a ton of bricks, the first thing i hear in my head when I wake in the morning (or in the night) is my own voice saying ‘you’ve got cancer, you’ve got cancer….”. Having to tell family and friends is difficult too but it’s better once you do. I believe the other ladies are right that once we have a treatment plan and know what’s happening we will feel much better about it all. None of us are alone so keep strong we are all in this together. Xxx

  • FormerMember
    FormerMember in reply to 2gether

    It's a terrible thing to say, but it's honestly good to hear that someone else is in exactly the same position as me. Would love to stay in touch as we begin our treatment together xx

  • Definitely- a great idea xx

  • Hi 

    You're in shock! And disbelief. Somehow slowly and surely things will start to make sense. You never known fear, anxiety n darkness like before...but be assured this will pass. I was like this at the start of Oct. BC is very treatable...rely on the experts and ladies here for comfort as you come to terms at every phase of your journey. 

    I had mastectomy and now awaiting treatment. Many will tell you take a step at a time. I personally feel just done let your imagination or darkness run away in your head but keep to the facts. We are all here for u. Keep talking and asking your questions. Write down list of questions before each appointment else u will forget, take someone with u if possible. Get friends family to support 

    C x