Tired and not coping

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Getting dressed on a Sunday 16th October my breast felt a bit sore. I knew straight away that I was in trouble and booked to see my GP that Thursday. She thought it was a good sign that the changes had been recent having had a first mammogram March of last year but did say she was concerned by my symptoms. Then followed an anxious 2 wk 6 day wait to be seen at my local breast clinic. As the consultant performed the ultra sound, the silence, the clicking of the screen, the strobe over my armpit followed by more clicking - you know it is not good. As I disintegrated on the couch, bless him he held my hand as a nurse was called for. Biopsies taken of my breast and lymph’s then another anxious wait for the results. Concern expressed that it - the cancer, could have travelled elsewhere so a CT scan booked. Another week till the results as I disintegrate into darker and darker places and begin to plan my funeral. Finally to this Tuesday - the phone call, the scan is clear with first appointment with oncology next Monday. I am now at the point of complete physical and mental exhaustion and not being able to find any reserves of strength on both fronts. To complicate matters my son had chemo earlier this year which resulted in me having 6 months off work to care for him and manage my own stress levels. Back at work for just  four months, then this. The waiting has been unbearable at every stage with little by way of any treatment plans yet in place. The breast nurse has indicated that any treatment would be roughly two weeks after next weeks appointment bringing the time to two months since cancer was first suspected. Meanwhile I am terrified that the cancer will grow and move out of the lymph’s.

My diagnosis is grade 2 invasive Micropapillary, Er And Pr + with HER 2 borderline - more tests being done on the latter. I have read that this is a more aggressive type of BC and very rare with less favourable prognosis.  I am 50 years old and had been on HRT for 10 years due to peri menopause - straight off that now. I also have a faulty X chromosome and wonder if this could all be related. There has been no cancer in my family at all and I have never had any surgery. Never smoked and do not drink and a healthy weight up till menopause.  Guess I have been lucky health wise up till now  but whilst knowing that cancer is cruel and targets seemingly at random,  the timing could not be more cruel and I am worried that this will hinder my sons own recovery from a major life saving operation. How do I cope? I really just do not know right now, so so tired. Scared, frightened ....... friends shocked (2.5 yrs of major family trauma without putting details) and asking “when will there be a let up for us” - “ you must fight this .....” fight , I just don’t know how. 

  • Hello Bubblemum. I'm sorry you have cause to find yourself here but am sure you will find support by being part of this forum. 

    Like you I am a fit and otherwise healthy nearly 57 Yr old with no family history and my early breast cancer was picked up on my third routine mammogram. Dont smoke, rarely drink and eat very healthily with regular exercise. Fortunately it seems to have been picked up early but it doesn't stop the worry and the dark thoughts so you are not alone on feeling like that.

    Also like you, I have had family illhealth with my partner having to prematurely stop work ahead of planned end at 60th birthday and then having to battle for release of pensions on I'll health grounds. We had just navigated that and hopes things were settling down then I, the fit and healthy one, gets this diagnosis. 

    It's tough but the treatments for BC are so developed and getting better all the time. The worse is the waiting and uncertainty and everyone here will identify with that!  Although I have a likely treatment plan of surgery on 7th then probably radiotherapy and hormone treatment that could all change when they get it out and have a good look and that preys on my mind especially if I'm having a low day.

    Best advice I can give is be kind to yourself, cry when you need to and try to keep focussed on what you actually know for a fact and try not to create negative scenarios that very likely won't be realised. Easier said than done  (I  know! ) but take each day as it comes 

    Sending you much love xx

  • Dear Bubblemum so sorry to hear you have BC, the scariest word, it is hardest at the start but will get easier, once you get your treatment plan it helps to feel like you know what is going on and what will happen, we have all been where you are now and know how it feel, before you know it you will be the one answering posts of scared women who have had BC diagnosis.  It is all doable and it is not a fight but it is a bit of an endurance test.  You can do this, one day at a time, we will help to support all the way through, love from Ann

  • Hello Bubblemum, reading your post I can so understand how you must be feeling, I'm not qualified to help, but perhaps you could make physical contact with your local Macmillan centre and talk through your fears and how you feel, as you should have someone to lean on and sometimes family and friends, however lovely they are, are not enough and professional help and advice could be the answer.  My circumstances are not the same as yours, but I can tell you when I started my journey in September, life wasn't good. Two operations later and radiotherapy due in the new year, I still get panicky and cry, but I'm getting there and so will you. I wrote out the music for my funeral, I think this must be a normal reaction. Maybe focus on the love between you and your son, go for walks or try to do what gives you pleasure.  And remember, treatment has come a long way and there are literally thousands of us, so you're not alone. Sending you and your son love. X

  • Hi 

    Life so cruelly throes us curve balls! Bat it back!!

    I sorry you have joined this group of unwilling members. Like u I have got dark days where I just don't know how I can carry on!! Then u dig deep, my son relies on me to stay alive! What other options is there but to keep alive and well best you can. On paper diagnosis seems dire and I still cry looking at the histology report. I cry looking at my body...I cry when I can't cope. But you know crying releases you from many worries, fears, pain physically and mentally. 

    As a mum you do find strength...I do hope you have an understanding employer who is empathetic. I am sorry to hear about your son too. Speaking up I find is therapeutic to offload and make sense of it all.

    In my earlier post diagnosis days I wasn't in a good place like so many women here. You can ring Macmillan helpline or Breast Cancer Now and get "someone like me" referral...those helplines are invaluable!

    Rely on us here too. Take a step at a time IS all you can do!

    Cx 

  • Hi Jurassic girl - thank you for taking the time to reply - BC seems to have struck you too at a time when your reserves of strength were depleted like mine. You have stayed positive and I wish you all the best that medicine can give you. I have cried so many tears and have found the emotional roller coaster to be more tiring than anything else but whilst feeling incredibly depressed still it is not as bad as yesterday. As good old Captain Tom said “ tomorrow will be a good day” x much love

  • Thank you Ann for your reply and support. You are right it will be an endurance test - I hate the fight word already. From everything I have read it seems all this early waiting is the worst part for many. I really hope I will have some kind of treatment plan on Monday. I am a doer who likes structure so I know this would help me. Each day I wake up and think right only so many sleeps till the next appointment/ results .....each day like walking through a daymare. Love back x

  • Hi Gazeebo - thank you for taking the time to reply. I am thinking of approaching the hospital for psychological support. We have been through so much as a family and as my son and daughter said “ it’s just one more thing we need to get through as a family mum” They are so strong but who knows what the long term impact of the last few years will be. You are right, I feel so alone even with my beautiful family surrounding me. I guess this is why I reached out in this forum yesterday. I have asked my hubby to finish work an hour earlier so we can visit the Macmillan Centre at the hospital prior to my appointment in Monday. I will go armed with a bag! Thanks again. Love x

  • Hi C thank you for taking the time to reply. I do think we are all in need of psychological support but I have spoken to a lovely lady on a Macmillan helpline who have me an overview of the support they can offer. I guess there is so much out there I just did not know where to begin so I started with work issues. I was really worried how work were going to react after so much time off earlier in the year. They did not understand the situation but did eventually apologise for the way the situation had been handled. So far so good this time but I have spoke to my union just in case to give them the heads up. The someone like me looks like a good idea. I am tackling things one at a time so will certainly look at this after Monday. 

    It looks like we all have cried so many tears .... understand what each other is going through. One step at a time and each day by day.

    R x

  • You are very welcome and you are right in that it had already been a tough couple of years before this piling on top ! 

    Like you, I have a supportive adult children and my teenage granddaughters (15&13) have been fabulous also. We are hoping our twice cancelled (due to covid) trip to California with them goes ahead July 22 so I am focussed on that. Their other Nanny had had a 3rd stroke at the time I was diagnosed so they've had a lot to deal with but their positivity and humour is truly an inspiration 

    I've had to stop my HRT and am now 3 weeks cold turkey ( alternating it made me worse) and actually feel better mood wise but boy do I ache and feel everyone on my years right now! I think that's contributing to my tiredness together with a head cold that went to my sinuses so I'm making sure I eat well and get outdoors as much as possible as I live by the sea and have lovely views

    I'm back to work next week after a preplanned weeks leave so that will help pass the time and then this invader will be removed - I can't wait for that although loath GAs. Then another anxious wait until the final results hopefully before Christmas and then we will know what 2022 will bring treatment wise.

    It is a rollercoaster of emotions and I think I've experienced every possible one - including being seriously p*ssed off (I seem to like that one :-) all anyone us can do is put one foot in front of another and take each day as it comes 

    Much love xx

  • Hi, Bubblemum.

    I seem to have a similar story and diagnosis to you, Grade 2 invasive micropapillary, ER and PR positive, HER negative, I also have lots of affected lymph nodes. 
    It seems to be rarer, aggressive, and not a lot of information about it specifically.

    My treatment plan is chemo then mastectomy and axillary clearance then radiotherapy then oestrogen blockers.

    Does this sound similar to your plan? You are a good bit ahead of me, and everything is happening so slowly in my journey so far.

    I would be keen to hear how you’re getting on. Hope things are going ok, thanks x