My journey so far

FormerMember
FormerMember
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Diagnosed with invasive ductile carcinoma on August 16th on my annual mammogram! (Background, my father had breast cancer so I was offered annual mammograms six years ago at the age of 45) all six annual mammograms were clear until this year, so in 12 months I had developed what was reported on as predicted stage 1 er & pr + and her2 neg 13mm. the plan was a WLE, lymph node removal and radiotherapy. I had surgery on the 27th October and all went well and recovering well, just some soreness under the arm. After diagnosis and prior to surgery I would experience an intermittent throbbing pain where the tumour had been discovered. I mentioned it to the consultant who didn’t offer a potential reason however her reaction didn’t give me cause for concern.

roll forward and pathology results from surgery came in last Thursday, I was told my tumour was stage 2, but the margins contained ductile carcinoma in situ so I require further surgery to ensure clear margins. I’m okay with this plan but concerned that the tumour had been upgraded to stage 2 following surgery. I have been assured the invasive element of the cancer has been removed now, and I’m on a priority waiting list for re-excision, hopefully this will sort the issue of clear margins. My worry now is that the DCIS May turn to invasive before the next surgery as my original tumour must have  developed quite quickly. I’m also not sure now if I will require chemo therapy, the registrar wouldn’t commit! The radiotherapy is a definite at some point.

  • The registrar cannot commit because they are not the decision maker, that is for the consultant to adjudicate. As for the staging, that can happen sometimes once they can see directly rather than rely on scans, but I would raise the concern with the nurse and ask her to get you some feedback from the consultant. About the margin, if it was close to the edge but not touching then possibly they got all of it, they should be able to clarify this too.